Marfan Syndrome (cont.)

Where can people find additional information about Marfan syndrome?

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Information Clearing House
National Institutes of Health
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267)
TTY: 301-565-2966
Fax: 301-718-6366

Other Resources

National Human Genome Research Institute (NHGRI)
National Institutes of Health

NHGRI Genetic and Rare Diseases Information Center

National Marfan Foundation (NMF)

National Organization For Rare Disorders (NORD)

March of Dimes Birth Defects Foundation

American Heart Association


The NIAMS gratefully acknowledges the assistance of the following individuals in the preparation and review of the original version of this booklet: Bernadette Tyree, Ph.D., NIAMS/ NIH; Priscilla Ciccarielo, Director Emeritus, National Marfan Foundation, Port Washington, NY; Harry C. Dietz, M.D., Johns Hopkins University School of Medicine, Baltimore, MD; Carolyn Levering and Eileen Masciale, National Marfan Foundation, Port Washington, NY; Francisco Ramirez, M.D., Mount Sinai School of Medicine of the City University of New York, NY; and Joel Rosenbloom, M.D., Ph.D., University of Pennsylvania, Philadelphia, PA.

SOURCE: National Institute of Arthritis and Musculoskeletal and Skin Diseases. Marfan Syndrome.

Last Editorial Review: 8/1/2012

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