Marfan Syndrome

Where can people find additional information about Marfan syndrome?

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Information Clearing House
National Institutes of Health
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267)
TTY: 301-565-2966
Fax: 301-718-6366
E-mail: niamsinfo@mail.nih.gov
Website: www.niams.nih.gov

Other Resources

National Human Genome Research Institute (NHGRI)
National Institutes of Health
Website: www.genome.gov

NHGRI Genetic and Rare Diseases Information Center
Website: www.genome.gov

National Marfan Foundation (NMF)
Website: www.marfan.org

National Organization For Rare Disorders (NORD)
Website: www.rarediseases.org

March of Dimes Birth Defects Foundation
Website: www.marchofdimes.com

American Heart Association
www.americanheart.org

Acknowledgments

The NIAMS gratefully acknowledges the assistance of the following individuals in the preparation and review of the original version of this booklet: Bernadette Tyree, Ph.D., NIAMS/ NIH; Priscilla Ciccarielo, Director Emeritus, National Marfan Foundation, Port Washington, NY; Harry C. Dietz, M.D., Johns Hopkins University School of Medicine, Baltimore, MD; Carolyn Levering and Eileen Masciale, National Marfan Foundation, Port Washington, NY; Francisco Ramirez, M.D., Mount Sinai School of Medicine of the City University of New York, NY; and Joel Rosenbloom, M.D., Ph.D., University of Pennsylvania, Philadelphia, PA.

SOURCE: National Institute of Arthritis and Musculoskeletal and Skin Diseases. Marfan Syndrome.
<http://www.niams.nih.gov/Health_Info/Marfan_Syndrome/default.asp#11>

Subscribe to MedicineNet's Children's Health & Parenting Newsletter

By clicking Submit, I agree to the MedicineNet's Terms & Conditions & Privacy Policy and understand that I may opt out of MedicineNet's subscriptions at any time.

VIEW PATIENT COMMENTS
  • Marfan Syndrome - Experience

    Please describe your experience with marfan syndrome.

    Post View 33 Comments
  • Marfan Syndrome - Causes

    What was the cause of your Marfan syndrome?

    Post View 7 Comments
  • Marfan Syndrome - Treatment

    What kinds of treatment have you or someone you know undergone for Marfan syndrome?

    Post View 3 Comments
  • Marfan Syndrome - Symptoms

    What symptoms do you experience with Marfan syndrome? How do you cope with them?

    Post View 3 Comments

Health Solutions From Our Sponsors