Patient Comments: Microscopic Colitis - Treatments

What was the treatment for your lymphocytic colitis?

Comment from: Stan, 75 or over Male (Patient) Published: August 27

I found the culprit on my own since the doctors didn't have any answers. My microscopic colitis was diagnosed several years ago at age 65ish. After a while I decided to have a good long look at the foods I was eating, so started to keep a journal. When I would have a flare I would look back at what I had eaten and what ingredients were in those foods. Lo and behold! MSG (monosodium glutamate) was the big bad culprit. I stopped eating anything with MSG in it and almost eliminated the problem entirely. Sometimes foods high in glutamates like tomatoes and tomato products like catsup or anything made with tomato paste can trigger symptoms, too. I've found that eating fresh (not canned or pre-prepared) foods are best for keeping the beast away.

Was this comment helpful?Yes
Comment from: Ladybug, 65-74 Female (Patient) Published: July 28

I have microscopic colitis and was treated with budesonide. It seemed to help at first then stopped. I now take Lomotil to manage my diarrhea and some days I only have diarrhea once. I was having 6 to 8 trips to the bathroom and some during the night. I wonder now if it is going away or just giving me a temporary break.

Was this comment helpful?Yes
Comment from: Twinkiltoes, 55-64 Female (Patient) Published: June 30

I was diagnosed with colitis and put on medications. Then I started a no sugar, no dairy, no fruit, and no carb diet. I went off my medications because now I am constipated. I'm not sure what it is I ate before that caused it. The only dairy I ate was cheese. Makes me worried about starting to eat again.

Was this comment helpful?Yes
Comment from: 7hdui3, 45-54 Male (Patient) Published: June 18

After several years of diarrhea, I had an upper gastrointestinal (GI) scan that showed nothing, except the contrast moved through my system very quickly. My GI doctor prescribed cholestyramine, which doesn't work well in reducing cholesterol, but does have a side effect of constipation. However, it didn't really change my symptoms, so my doctor performed a colonoscopy. The results were clean, but after taking biopsies, I was diagnosed with lymphocytic colitis in February 2015. True to the literature, the doctor said causes and cures were unknown at this time, but he gave me some 30-day samples of EnteraGam, and I started to see improvement within days. It doesn't taste very good, so I asked my doctor if I could mix it with the leftover cholestyramine (citrus taste) and Citrucel (citrus). He told me to try it out, and let him know immediately if there were any problems. Nearly five months later, my system is working better than it has in years. EnteraGam is shipped from the manufacturer, and it costs about $50 per month. But I have found it to be a great value in returning me to normal, daily functions.

Was this comment helpful?Yes
Comment from: phmmfg, 55-64 Female (Patient) Published: May 05

I was diagnosed with lymphocytic colitis 1 1/2 years ago, in December 2013, after a couple of years of occasional watery diarrhea and then a solid month of watery diarrhea that didn't respond to Lomotil, Pepto-Bismol, or any of the usual medications. It took a biopsy of my colon to confirm the diagnosis. I was on sertraline for many years, so I suspect that was the cause. Budesonide (Entocort) works great for me, but yes, it is expensive and I worry about the long term side effects of chronic steroid therapy. My bone density actually improved after my diagnosis because it kick started me into being more active and taking better care of myself. I avoid gluten and lactose just because it seems to aggravate cramping, even though I didn't test positive for gluten intolerance. Yes, it is awful to have this disease, but it is manageable and isn't fatal, so I try to stay positive.

Was this comment helpful?Yes
Comment from: Martha, 35-44 Female (Patient) Published: May 04

In 2008 I took clindamycin for a sinus infection and after the last pill I started having severe diarrhea. Prior to that I never had any digestion/gastro issues whatsoever. I ate everything with no problems. Years of testing, medication, no eating, watching everything I put in my mouth, they finally diagnosed me with microscopic colitis in December 2014. I tried one month of Apriso, it helped but I experienced side effects. I had to take 4 days of probiotics recently and since then my colitis symptoms are back and seem worse (gas, nausea, diarrhea, cramping). Just miserable! I'm going to take another month of Apriso again to see what happens. My life is a roller coaster now and I just wish I could find a daily medicine that will help. I feel so unhealthy now and just want back my health.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Microscopic Colitis - Cause Question: What was the cause of your lymphocytic colitis?
Microscopic Colitis - Symptoms Question: What symptoms did you experience with your microscopic colitis?
Microscopic Colitis - Prognosis Question: What is the prognosis for your case of microscopic colitis?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

Health Solutions From Our Sponsors