Patient Comments: Lymphedema - Treatment

What kinds of treatment did you receive for lymphedema?

Comment from: Carol, 65-74 Female (Patient) Published: October 01

I was diagnosed with lymphedema in both legs. I went to a therapist for a while and then was given a home pump and garments to wear. I am in worse shape now than I was in before. The swelling is down but I can hardly walk and lose my balance a lot.

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Comment from: Nnenda C, 25-34 Female (Patient) Published: December 09

I was diagnosed with primary lymphedema in 1990 after I had a knife injury on my left foot; it affected the both legs. I had a corrective surgery on my lymph nodes, the surgery was carried out on both the sides of my legs and on my foot, three surgeries on the right leg and three surgeries on my left leg. After the operation I was advised by the doctor to always raise my legs with a pillow above my body level and that it will help the fluid flow from my foot to my body and it has been working for me. My left leg has stopped swelling I am managing the right leg by raising it up above my body level. I have been managing it for 23 years now.

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Comment from: bigron048, 45-54 Male (Patient) Published: November 24

Well, here's my situation. For about 18 years now I've suffered with lymphedema and have been to every doctor imaginable and I've tried every device out known to man. And nothing has worked. I've even considered surgery to try and correct it but the only problem is no one will attempt it so I don't know what to do. I'm sort of at the end of my rope. Of course as to how I developed it is unknown.

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Comment from: bob, 75 or over Male (Patient) Published: February 10

I've had lymphedema for about two years, I think it started after groin surgery. I am looking for a specialist that can help me. It seems like they don't know how or I'm just not getting the right doctor. I have it in both legs. I have a lot of pain, and I'm getting so upset.

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Comment from: dalcrazy, 65-74 Female (Patient) Published: December 16

My lymphedema is caused by nodes being removed due to breast cancer. I have had it for 13 years and had two bouts of cellulitis. I have had lymphatic drainage every two weeks by a certified lymph drainage person. I also have various sleeves and wraps.

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Patient Comments

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Lymphedema - Symptoms Question: Describe the symptoms associated with your lymphedema.
Lymphedema - Experience Question: Please share your experience with lymphedema.
Lymphedema - Diagnosis Question: Describe the events and tests that led to a diagnosis of lymphedema.

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