Patient Comments: Lyme Disease - Treatments

How was your Lyme disease treated?

Comment from: Denby1957, 55-64 Female (Patient) Published: July 24

I was treated with Ceftin after getting a Lyme titer test. I had flu like symptoms, miraines, stiff neck (in which I could not lift my head) no rash, chronic fatigue, and generalized pain in my joints. It took over 6 weeks to start feeling better. That was over 18 years ago and I have arthritis and pain in my eyes from the effects of lyme disease.

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Comment from: sad-sister, 45-54 Male (Caregiver) Published: May 30

My brother has frontal temporal dementia from Lymes that went undiagnosed for over 15 years. In NJ, the test is not accurate. He had 6 blood tests and 2 spinal taps. All were negative for Lymes. I knew he had it, so we sent his blood to IGENEX labs in California via a Lymes literate specialist in NJ, and got the Lymes diagnosis finally. But it was too late. Now, he is institutionalized from frontal temporal Lymes dementia.

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Comment from: bimini, 55-64 Female (Patient) Published: May 23

I know I had been exposed to ticks this spring (2012) since I have picked them off of me. However, I never had red spots or really irritated skin. I am not sure how long it had been since I was bitten by a tick. My symptoms came on suddenly like the flu with fever, chills severe headache and back pain like I was in labor. I really got sick on a Sunday and went to my doctor on Tuesday. He put me on Doxycycline Hyclate 100 mg and today, Wednesday, my back pain is gone, headache is almost gone, fever is still breaking. I am thankful I should make a full recovery.

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Comment from: jls, 45-54 Female (Patient) Published: December 08

I have been sick for 10 years and have been tested over and over again I've thought for a long time its lyme. When I first got sick I had rash small one on my lower leg then depression and really bad flu and couldn't move my arms without intense pain this was 2001 my doctors conclusion fibromyalgia. since it has been downhill it is now 2011 and i got a terrible rash like bulls eye on arm joint then on the left side of my face and i have had numbness up and down my body and joint pain 24/7 along with all kinds of weird other things. Can't find a doctor who will listen and take time to care. Help me please.

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Comment from: cher, 55-64 Female (Patient) Published: July 20

In June I found a tick on my lower abdomen. It was the size of a poppy seed. Immediately the target site grew and itched terribly. Three weeks later I had lower back pain or kidney pain. My skin hurt on my thigh and back. Now I'm on doxycycline. I've been on it for 6 days and am improving daily. I still get what I call Lyme Attacks. Legs turn to water and I ache all over.

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Comment from: Ship Repair Sup., 45-54 Male (Patient) Published: May 19

I was treated with doxycyclin, B-12 and vitamin D. It has been 6 weeks now and I suffer with aching and numbness in both arms to whole body aches and both legs have numbness. I have low back aches more than what I was accustomed to with my scoliosis and I do not have or have had migraines in the back of my head since my seizure 9 weeks ago. I have minor headaches in my front lobe areas. I have had an EMG from my neck to my fingers and it was negative. My carpal tunnel in my right arm and arthritis in my hands have been aching more than usual lately. Retest for Lyme is in 2 weeks. I feel I still have it and pray God will remove it.

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Comment from: ande1son, 7-12 Female (Caregiver) Published: March 23

My son was diagnosed with Lyme Meningitis in 2009 at the age of 11. First treated with 30 days of Doxycyclin. That failed and he was hospitalized again about a week after where he had the Picc Line inserted and required IV meds for 30 days. He still gets symptoms here and there such as the headaches, chest pain, and joint pain, but nothing like it was.

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