Patient Comments: Lyme Disease - Treatments

How was your Lyme disease treated?

Comment from: Cathy, 45-54 Male (Caregiver) Published: July 24

My brother has Lyme disease. Went to 14 doctors and the last one gave him the antibiotic for Lyme but refused to acknowledge that my brother had Lyme. The drugs began to work, but the doctor would not renew the prescription. He has now turned to alternate treatment called the Rife machine. He has been taking the treatment for several months now and is doing really well. The person he gets the treatment from is a chiropractor in Niagara Falls. He almost died of Lyme but then discovered the rife and in a desperate attempt to get better tried it. He is now totally healed. Try this treatment. It is not inexpensive but it works.

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Comment from: hayduk, 35-44 Female (Patient) Published: September 22

I was diagnosed with Lyme disease in 2004. I did oral antibiotics. Then I had an IV chest line put in and two years of drip IVs of numerous antibiotics. It was to the point that I couldn't even get out of chair due to severe arthritis. Still to this day, I get tired all the time and have sharp shooting pain throughout my joints.

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Comment from: Sharon tate, 25-34 Female (Patient) Published: April 19

I was very tired to I decided to get tested for Lyme. Call me weird, but I was sleeping up to 18 hours a day and had no other symptom. Lo and behold! I tested positive for Lyme disease. I am on Ceftin now and thankful that I caught this early.

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Comment from: kittykat, Published: March 16

In 1972, I lost my mother to a rare illness. Little did I know that it was Lyme disease. I was 7 years old at the time and I remember my mother being in and out of the hospital on various occasions. She was bitten sometime in the summer and I lost her a few months later. I remember seeing her legs were covered with what resembled measles. There were these little red spots all over her legs. She needed to use a walker because her legs were not functioning well enough. My grandmother said that my mom died of a rare disease. I wish there were evidence of any research back in 1972, and had there been, my mom would still be here today. I am now 46 and my mother has been gone 38 years. I hope that with today's medical advancements, no other child will have to go through the sorrow of losing a parent.

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Comment from: tammy, 35-44 Female (Patient) Published: March 20

I have been to seven doctors and have had several different diagnoses. I am very tired and have pain all over. Also, I have a mysterious looking rash on the back of my legs. Sometimes I can't get out of bed in the morning. I'm dizzy and have pain in my legs, back, head, ear and find it hard to lift my arms sometimes. I also have numbness in my hands and swelling in my legs and feet when I'm on them too long. All the doctors think I worry too much and nothing's wrong with me. I just want someone to help me

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Comment from: Denby1957, 55-64 Female (Patient) Published: July 24

I was treated with Ceftin after getting a Lyme titer test. I had flu like symptoms, miraines, stiff neck (in which I could not lift my head) no rash, chronic fatigue, and generalized pain in my joints. It took over 6 weeks to start feeling better. That was over 18 years ago and I have arthritis and pain in my eyes from the effects of lyme disease.

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Comment from: sad-sister, 45-54 Male (Caregiver) Published: May 30

My brother has frontal temporal dementia from Lymes that went undiagnosed for over 15 years. In NJ, the test is not accurate. He had 6 blood tests and 2 spinal taps. All were negative for Lymes. I knew he had it, so we sent his blood to IGENEX labs in California via a Lymes literate specialist in NJ, and got the Lymes diagnosis finally. But it was too late. Now, he is institutionalized from frontal temporal Lymes dementia.

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Comment from: bimini, 55-64 Female (Patient) Published: May 23

I know I had been exposed to ticks this spring (2012) since I have picked them off of me. However, I never had red spots or really irritated skin. I am not sure how long it had been since I was bitten by a tick. My symptoms came on suddenly like the flu with fever, chills severe headache and back pain like I was in labor. I really got sick on a Sunday and went to my doctor on Tuesday. He put me on Doxycycline Hyclate 100 mg and today, Wednesday, my back pain is gone, headache is almost gone, fever is still breaking. I am thankful I should make a full recovery.

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Lyme Disease - Diagnosis Question: How was your case of lyme disease diagnosed?
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Lyme Disease - Symptoms Question: What were the symptoms you experienced with Lyme disease? Did you think it was something else?

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