Patient Comments: Lumbar Spinal Stenosis - Experience

Please describe your experience with lumbar spinal stenosis.

Comment from: Lynda, 65-74 Female (Patient) Published: August 04

Now that I am aware of lumbar spinal stenosis and had to answer a series of questions from my doctor, I've realized I actually started with sciatic pain at age 8; my mom called it growing pains. Through the years it flared up occasionally but not badly enough to inhibit activity but for a day or so. Fast forward to 10 years ago and the pain has increased in intensity and frequency to constant. It is now just constant pain in one side of my buttock muscle. Sitting is very helpful but I'm gaining weight in my middle as I am in too much pain to do much walking or standing. Ibuprofen has been helping but not so much anymore. I'm getting my first epidural this week. I hope it helps! I don't have big expectations though. This is as frustrating as I have been physically active my whole life. From what I've read, I don't think I want surgery that the doctor has suggested.

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Comment from: Janice, 65-74 Female (Patient) Published: June 24

I was diagnosed with degenerative bone disease in the late 80s. I have lumbar spinal stenosis and sciatica. Currently I take tramadol 50 mg twice a day as needed for pain and stiffness with a nausea medication. It works, however, I found out that in my case physical therapy works! I am not a candidate for surgery, and truthfully speaking, I have not met anyone that has had the surgery for whom it improved the quality of their lives. I also apply heat to my back, moist heat seem to work better. Massages will help too.

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Comment from: PEEPS, 65-74 Male (Patient) Published: March 02

I have lumbar spinal stenosis, with a bulging disc and some scoliosis. Doctors say I need a fusion for my back, and double knee replacement. My feet are numb, I have edema and now I am starting to have problems with incontinence. I started to have a lot of pain in my shoulder with pain radiating down my arms to my fingertips, but it moves around sometimes it is in my neck, sometimes in my hips and a lot of the time in my legs causing cramps and tightened hamstrings. I have to walk with a cane, my gait is very unsteady. I have terrible sinusitis, headaches and pain in my eyeballs. I was diagnosed with a vitamin D deficiency which after reading a great deal about it discovered that every one of these problems can be caused by vitamin D deficiency. I am not saying that everyone's problems can be caused by a D deficiency but getting a blood test for it couldn't hurt if it will alleviate some of your pain. Many doctors are just beginning to learn about the healing powers of vitamin D at the right dosages. Many felt that we got enough in the food that we ate or that we got enough sun to benefit us. Now however they are finding that age, where you live, or how you live, are you a shut in, do you rarely go outside, due to age or sickness, etc. It has a great deal to do with the amount of D in your systems. Doctors are in the habit of thinking 400 units of D is enough now they know that 5000 units is an average and can give you up to 50,000 a day or week if severely deficient. Take some time to read up on this vitamin which isn't really a vitamin but more like a hormone, it is far reaching in its health benefits. It takes time to see the effects, it can be 6 months to 2 years. If you are heavy like I am, you need 2 to 3 times as much because it is fat soluble. Insist that your doctor test you, because this is one test that they tend to overlook or don't connect the dots. I hope this helps someone; it sure is helping me. I happen to be older but that doesn't matter it affects both young and old, age is irrelevant.

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Comment from: Dee4Dolphin, 65-74 Female (Patient) Published: February 24

There is hope for people with lumbar spinal stenosis. Extreme and chronic sciatic pain kept me semi and fully bedridden for 35 years, I am now 72 years old. Hydrotherapy 3 to 4 times a week for 3 years has restored my body strength to regain an active and normal life again. Ice and heat packs with low dose Lyrica deals with any pain as I continue to get stronger and stronger every day. I use a Mantra 'every day, I am getting stronger, mentally and physically.' Say it 4 times a day. Then, find your passion and re-connect again to the love energy of nature and your Life!

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Comment from: Teddy, 45-54 Female (Patient) Published: February 06

I am 54 and developed severe lumbar spinal stenosis very quickly. I have severe (unbearable) pain when standing longer than about 5 minutes, and the same with walking. I also experience numbness and tingling down one leg and foot, which is getting worse. After consultations with a spinal specialist, I am going for surgery as soon as possible. This is no way to live. Also, after experiencing recent air travel (long distances in airports), I am opting to use a wheelchair for walking outside the home. It seems the only practical solution for maintaining mobility.

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Comment from: D, 55-64 Male (Patient) Published: February 03

I have suffered from lumbar spinal stenosis for 5 to 7 years, the past 2 years being progressively worse in terms of a burning sciatica sensation down my left leg. In November 2014 I decided to have the MILD (minimally invasive lumbar decompression) procedure on L4/L5. At first I was ecstatic as the burning was gone, and flexibility and strength were returning. I was hoping it was from the MILD procedure and not the cortisone that was injected. Approximately 6 weeks after the procedure the burning has started. It is different than before, in some ways not as severe as before and in some ways more severe particularly when I wake up in the morning. I also can't lay on my left side very long as the pain increases. I am interested in others' experiences with MILD or what has helped them with their stenosis.

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Lumbar Spinal Stenosis - Symptoms Question: What were the symptoms of your lumbar spinal stenosis?
Lumbar Spinal Stenosis - Treatment Question: What kinds of treatment, therapy, or medication did you receive for lumbar spinal stenosis?

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