Patient Comments: Liver Cancer - Describe Your Experience

Please describe your experience with liver cancer.

Comment from: Beebosmommie, 55-64 Female (Caregiver) Published: March 19

My sister at age 56 was diagnosed with Stage 4 Advanced Adenocarcinoma Liver Cancer from an unknown primary in September. She passed away 4 months later. The cancer ate right through the many rounds of chemotherapy she was given. It was so aggressive. It has been said that people who live in 3rd world countries are at a higher risk of developing this type of cancer because they don't have access to the advanced medical care that people in the United States easily have. My sister was an American living in the United States. How could this happen to someone who was under the care of 3 doctors one of which was an endocrinologist, a gastroenterologist and an internist? How does this type of cancer go undetected? Had she not gone to her internist complaining of her side hurting and that doctor doing an X-ray of her ribs and a CT scan, she would not have known she had this cancer. The CT scan picked up the top of her liver which showed the tumors. Her doctor told her that this cancer had been growing for at least 1 year. How did it run under the radar? The doctor's explanation was it's like a submarine, it lays low for a long time and then all of a sudden it decides to attack and by then it's too late. Well can't they do a blood test to determine if you have a submarine laying at the bottom of your ocean? Needless to say, my sister suffered a horrendous death. We finally had to decide to have the hospice people sedate her to put her out of her painful misery. No one should have to suffer a horrendous death like that. For heaven's sake they put dogs and cats down with more compassion.

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Comment from: leslie lara, 35-44 Male (Caregiver) Published: March 19

My husband just passed away from hepatocellular carcinoma. He was diagnosed in August and passed away a year later in March. I can tell you this it is one of the most awful things I had ever experienced in my life, he did not know anything was wrong until he got hurt at work and started having trouble breathing. We thought he just had a cold, It was stage 4 by the time they found it. It is a silent killer in the last 3 day's of his life what killed him was complications due to the liver shutting down In most patients it spread's to other parts of the body. My husbands had spread from the liver to his ribs, spine, shoulder and brain. He also had no risk factors for the disease he never drank or had hep A, B or C, so it hits all walks of life. My husband was 43 and left behind 2 little girls ages 7 and 8. Please get regular checkups and insist they do complete body scans and blood work including the AFP test, to rule out this deadly form of cancer.

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Comment from: gary, 45-54 Male (Patient) Published: March 16

I am a 48 yr old male. Diagnosed with stage two colon cancer, and had a resection of the sigmoid colon - removing 17 inches and a dozen lymph nodes. All was good until my 1 yr colonoscopy/biopsy. It turns out that I have abnormal cells/dysplasia so I got a pet/ct scan which confirmed lesions/tumors on my liver - about 6 of them. So now I am told I have stage 4 colon cancer with liver metastasis. I am not a drinker or smoker and very healthy and fit. I now await a biopsy of the liver and a full pet scan to tell me my fate. The survival rate has to be higher than I am reading. I mean I feel good. so does it just hit me all of the sudden? I have some low back pains, etc, but I am very active. I don't know, but I have to beat this thing, I just have too.

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Comment from: Xmasmiracle, 45-54 Male (Caregiver) Published: January 22

My brother is dying of Cancer; this was shock a shock to my family because in September we had such a Wonderful family Reunion! He looked so good, was not drinking, had lost weight and had been excising regularly! He went to see his doctor for pain thinking it was from excising to find out he had Liver Cancer and 3 tumors, he could not get a transplant due to those factors. The doctors told him he has 6 to 8 months, but I know it's just a matter of time! My sister's just came back from seeing him and was shock to see all the weight he had lost, he can not keep anything down, he's only on Assure, he is jaundice, his stomach is so blotted. He can not even answer our phone calls, work a cell phone or work his favorite computer. This has been the worst Holiday season! All I can do is listen for the phone, because I know it will be bad news. It's so sad because I wanted to grow old with my brother by my side, now I will only have distance memories. Liver cancer is the worst! All I can say if you have a pain on your right side you need to run to your doctors and have him run all kinds of test, because if you do not catch this symptoms early, you will die. I can only hope for a Xmas miracle, or that sleep for him comes swiftly and that he will rest in peace with no more pain, he will surely be missed!

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Liver Cancer - Treatment Question: What treatment are you undergoing for your liver cancer?
Liver Cancer - Causes Question: What do you think are the causes of your liver cancer?
Liver Cancer - Symptoms Question: What signs and symptoms did you experience with your liver cancer?
Liver Cancer - Diagnosis Question: How was your liver cancer diagnosed?

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