Patient Comments: Lichen Sclerosus - Treatment

What types of treatment, surgery, or medication did you receive for lichen sclerosus?

Comment from: 12 year suffer, 45-54 Female (Patient) Published: November 03

I first took an antihistamine for lichen sclerosus which helped. Bromelain and quercetin also give relief. I wish I had tried them earlier.

Was this comment helpful?Yes
Comment from: Arty, 65-74 Female (Patient) Published: July 28

I am undergoing da Vinci soft touch laser treatment for lichen sclerosus. I understand it cures it; not cheap.

Was this comment helpful?Yes
Comment from: Barbie51, 55-64 Female (Patient) Published: July 08

After almost 2 years of trying to treat the symptoms myself, not knowing it was lichen sclerosus, I made an appointment to see a gynecologist, and without even needing to visually examine me, she knew what it was. I was prescribed clobetasol cream, to be used twice daily, for 6 weeks. It did an amazing job of clearing it up after 4 or 5 days; however, 3 or 4 days after I stopped the treatment, the symptoms returned. I was then instructed to use it for another 2 to 3 weeks, then go to twice weekly. So far, it seems to control it better if I apply it every other day.

Was this comment helpful?Yes
Comment from: learninglady, 65-74 Female (Patient) Published: June 30

I also had a slight rash on my shoulders for a few months. Next I thought I cut myself with toilet paper. It burned like crazy when I urinated. I drank water with baking soda which neutralized the acid in my urine and took away the burning. I went to the doctor within a few months. He did a biopsy which showed I have lichen sclerosus. He prescribed clobetasol. I used it a few times but did not like it. I started using plain inexpensive castor oil, applied 2 times a day. It works great. It has been about 4 months now. I'll go back to the doctor in another 4 months and see what he thinks. Other women should try castor oil too.

Was this comment helpful?Yes
Comment from: Rikky, 45-54 Female (Patient) Published: February 10

I am 47 and have been diagnosed over a year ago with lichen sclerosus. It is spreading and has now covered my whole vagina and down to my perineum. I have been prescribed 4 kinds of steroid cream, and nothing works. I am in constant pain, making it difficult to sit, walk anything. I haven't been able to be intimate, as the skin splits every time. I am very frustrated, as no doctor seems to know how to alleviate my pain and suffering. I am mother to a little 5 year old, and most days I am tired, and sore, which makes me a very grumpy mum.

Was this comment helpful?Yes
Comment from: L., 55-64 Female (Patient) Published: October 10

My treatment for lichen sclerosus was mupirocin and Dermovate. I have been using them for a year already. I have a slight improvement, but mostly not cured. I wonder if one day science will find a final treatment for this terribly aching disease, for the quality of life is very affected by it.

Was this comment helpful?Yes
Comment from: Rose, 55-64 Female (Patient) Published: July 28

I was diagnosed via biopsy 8 years ago for lichen sclerosus. This is an awful disease which is relentless in its attacks of itching and soreness. I have been prescribed Dermol until recently when I had an adverse reaction with pain in the groin after medication. I am now using the Perrin's cream which is ok but I still get a slight tenderness which I am going to discuss with my dermatologist who I visit every few months. I do get thrush a lot which I am convinced is connected in some way. I am 62 years old.

Was this comment helpful?Yes
Comment from: April, 75 or over Female (Patient) Published: October 01

I have been treated for lichen sclerosus for at least 35 years with Premarin vaginal cream. I was told if untreated it could lead to cancer. I recently was diagnosed for breast cancer. I wonder if the use of this hormone could have contributed to my getting breast cancer.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Lichen Sclerosus - Symptoms Question: What were your symptoms associated with lichen sclerosus?
Lichen Sclerosus - Diagnosis Question: Please describe the events and tests that led to a diagnosis of lichen sclerosus.
Lichen Sclerosus - Doctors Question: What type of doctor did you see for your lichen sclerosus? Were you referred to a specialist?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.