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- Patient Comments: Lichen Sclerosus - Symptoms
- Patient Comments: Lichen Sclerosus - Diagnosis
- Patient Comments: Lichen Sclerosus - Treatment
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- *Lichen sclerosus facts
- What is lichen sclerosus?
- Who gets lichen sclerosus?
- What are lichen sclerosus symptoms and signs?
- What causes lichen sclerosus?
- How is lichen sclerosus diagnosed?
- What is the treatment for lichen sclerosus?
- Can people with lichen sclerosus have sex?
- Is lichen sclerosus related to cancer?
- What kind of doctor treats lichen sclerosus?
- Where can people find more information about lichen sclerosus and other related conditions?
What causes lichen sclerosus?
Doctors don't know the exact cause of lichen sclerosus. Some doctors think a too active immune system and hormone problems may play a role. It is also thought that people inherit the likelihood of getting the disease. Sometimes, lichen sclerosus appears on skin that has been damaged or scarred from some other previous injury.
Lichen sclerosus is not contagious (it can't be caught from another person).
How is it diagnosed?
Doctors can look at severe lichen sclerosus and know what it is. But usually, a doctor takes a small piece of the skin patch (biopsy) and looks at it under a microscope. This allows doctors to make sure that it is not a different disease.
How is it treated?
If you have patches on the arms or upper body, they usually don't need treatment. The patches go away over time.
Lichen sclerosus of the genital skin should be treated. Even if it isn't painful or itchy, the patches can scar. This can cause problems with urination or sex. There is also a very small chance that skin cancer may develop in the patches.
Surgery is normally a good option for men. Circumcision (removing the foreskin on the penis) is the most widely used therapy for men with lichen sclerosus. The disease usually does not come back. Surgery is normally not a good option for women. When the lichen sclerosus patches are removed from the genitals of women and girls, they usually come back.
Treatment also includes using very strong cortisone cream or ointment on the skin. You put these creams on the patches every day for several weeks. This stops the itching. Then you use the cream or ointment two times a week for a long time to keep the disease from coming back. Treatment does not fix the scarring that may have already occurred.
You need regular followup by a doctor because using these creams and ointments for a long time can cause:
- Thinning and redness of the skin
- Stretch marks where the cream is applied
- Genital yeast infections.
Sometimes, you don't get better when using the cortisone creams. Some things that can keep symptoms from clearing up are:
When creams and ointments don't work, your doctor may suggest:
- Retinoids, or vitamin A-like drugs
- Tacrolimus ointment
- Ultraviolet light treatments (not used on skin of the genitals).
If you need medicine, ask your doctor:
- How does the medicine work?
- What are its side effects?
- Why is it the best treatment for my lichen sclerosus?
If a young girl gets lichen sclerosis, she may not require lifelong treatment. Lichen sclerosus sometimes goes away at puberty. Scarring and changes in skin color may remain.