Patient Comments: Lichen Planus - Symptoms and Signs

What were the symptoms and signs of your lichen planus?

Comment from: Sammo, 25-34 Female (Patient) Published: January 15

I've just been diagnosed with lichen planus. It first started as itching on both my feet and then my ankles. I now have it on both my legs, wrists and hands, front and back of them. They are super itchy. The doctor I work for gave me Triamcinalone cream. It helps slowly but, I noticed a difference in irritation after a few days of use. My feet don't itch nearly as bad and the spots on my wrists don't look as irritated. I've never had any type of skin issues so this was weird. I don't take any medications and as far as I know I haven't been exposed to anything out of the ordinary. I had one person tell me it was an autoimmune response to stress. So, I'll try stressing less and see how it goes.

Was this comment helpful?Yes
Comment from: Erica, 13-18 Female (Patient) Published: January 03

I try so hard to keep my stress level down. But it is way too hard to do when I was diagnosed with lichen planus when I was 14. I've had it for a year now. My dermatologist had never seen such a severe condition. It started off on my wrist, then slowly over a month it got chronic and worse. It was spreading severely. I had to go to the ER because I had blisters on the bottom of my feet that were as big as baseballs. I couldn't walk. Now I'm almost 15 and I still currently have lichen planus. Every time I get lowered on steroids I get outbreaks. I mean I have outbreaks when I'm on a high dose but they are not fresh. I just would just really like to talk to somebody that knows a little more, because every time I go to the doctors they always tell me the same thing.

Was this comment helpful?Yes
Comment from: 55-64 Female (Patient) Published: December 11

It took almost a year for someone to finally determine that the sores in my mouth were lichen planus. It's partly my fault for waiting so long to ask for a referral to the periodontist. He knew right away. The tell tale sign for him was the white spiderweb like pattern on the inside of my cheeks as well as my red and inflamed, painful gums. He prescribed Flucinonide gel .5% to be applied to the gums 2-3 times per day. That is the first relief I have had. The soreness is much reduced and I am hopeful that I will regain some of the gum tissue I lost. My gums are much receded as well as very thin. I have been in treatment for a month. He has talked about a biopsy to rule out cancer, but no action yet.

Was this comment helpful?Yes
Comment from: russelsgirl50, 45-54 Female (Patient) Published: November 13

In 1961, I was born with lichen planus on my legs and ankles. My mother had gotten the painful rash on her legs when she was pregnant with me. I also had no toenails at birth. For many years we went to many doctors, but they were clueless. For several years we both had many shots put in our legs to see if it would help. I remember how they held me down to put the 15-20 shots in my legs weekly. So I grew up with the itching and pain for many years. My mother passed away, she still had the severe rash. My mom was a diabetic, which made her lesions very hard to heal. I on the other hand found a doctor that knew exactly what I had. He prescribed clobetasol ointment. It has done wonderful for me. I wish I had been able to find this when my mother was in such pain. Now I live with mostly just scaring on my ankles and legs. And when I have a flare up, I use the clobetasol and it calms down in a week or so.

Was this comment helpful?Yes
Comment from: laniecss, 55-64 Female (Patient) Published: September 26

I was diagnosed with lichen planus pilaris in my mid 30's , 20 years ago. I also had lichen planus, white patchy streaks in my cheeks which were quite painful. I would tell the dentist at that time in the late 1970's. He thought that I had early signs of oral cancer from smoking cigarettes. I did immediately quit smoking. When I was in my mid 30's I developed a rash on my forehead which looked like a sunburn that peeled. I also had a rash on my forearms and lower back, and small clusters of little bumps. I also had pimple like lesions on my pelvic area surrounding my pubic hair. I also lost the hair on my mid shins and forearms. Next I noticed my hair thinning and then it fell out in large circles. I eventually found a dermatologist in Boston who diagnosed it as lichen planus. I had a biopsy of my back and scalp and was told it was most likely lichen planus at a 99% rate of certainty. I was told it was a self limiting disease. It has subsided but I have lost large patches of my hair. I was treated topically with Clobetosol drops for my scalp and I also had Kenolog Injections when it flares up. It came back again in my mid 50's, but not as bad. I now am going to try doxycycline, and may try plaquenil if i have no side effects. I now wear a hair piece of natural hair that clips in with my own hair. This is made me much happier and less self conscious.

Was this comment helpful?Yes
Comment from: Janet1400, 55-64 Female (Patient) Published: July 06

I have had lichen planus since 1999. The first time I broke out on my legs and progressively got worse. I went to doctor and did a biopsy. I have it about every two years. I have it know and this is the worst case I have ever had. I have it on my legs, under arms, around the breasts, around navel and also have a toenail that has left a ridge in it.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Lichen Planus - Describe Your Experience Question: Please describe your experience with lichen planus.
Lichen Planus - Diagnosis Question: What types of tests or exams led to a diagnosis of lichen planus?
Lichen Planus - Treatment Question: What forms of medical treatment, including medication, did you receive for lichen planus?
Lichen Planus - Prognosis Question: Discuss your experience with lichen planus. Have you had any recurrences?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

Health Solutions From Our Sponsors