Patient Comments: Lichen Planus - Symptoms and Signs

What were the symptoms and signs of your lichen planus?

Comment from: mjof, 45-54 Female (Patient) Published: January 06

I have had lichen planus for 12 years. I have it on my back, and under breast (open blister). Red spots turn brown and legs look covered flea bites.

Was this comment helpful?Yes
Comment from: LichenPlanusFemale, 25-34 Female (Patient) Published: April 05

I'm now 31 yrs old, but can remember having a small linear skin irritation right on my groin area next to the outer/right labia when I was a young child. It was pink and periodically got itchy, and then would peel. As I grew older, the irritation persisted, and another one started forming along my right labia (almost perpendicular to the original one). It was pink bumps that became dry and itchy, and then would peel off, upon scratching. I would use Vaseline to alleviate these symptoms, but never really sought a dermatologist's help, until I was about 22. She had misdiagnosed it. She first treated it with a topical corticosteroid ointment, which helped, but I think I took it for too long, as the skin became slightly hyperpigmented and also the area adjacent to the lesion was slightly depressed. Today, she numbed and cauterized the lesions, and in 2 days I'll then reapply Elidel, and see if that can prevent the lesions from forming again. It's important to note that this condition doesn't go away and then return. It's persistent and chronic. I've had it for as long as I can remember.

Was this comment helpful?Yes
Comment from: 35-44 Female (Patient) Published: January 26

I have just been diagnosed with lichen planopilaris. My scalp hurts and is very itchy and has some bumpiness. They did a biopsy to diagnose it. I am learning that I might also lose my hair with this condition, which disturbs me greatly. I wish there were more information about this rare form of the disease, but I do not see much out there.

Was this comment helpful?Yes
Comment from: fancy, 55-64 Female (Patient) Published: March 20

About a year ago I had some dental work. Eight of my upper teeth received caps. Soon after that, white patches appeared on my tongue and inside my cheeks. My dentist told me it's lichen planus. I've been reading up on this and found out that an allergic reaction to dental materials can cause this. Has anyone else had this problem after dental work?

Was this comment helpful?Yes
Comment from: too many problems, 55-64 Female (Patient) Published: October 18

I was diagnosed with lichen planus about 2 years ago but went to many doctors before a dentist told me to go to a dental university. That is 2 hours each way for me. I had biopsy on my mouth and also had problems with my vagina. I went to another doctor for my vagina both biopsy were positive for lichen planus. My mouth had bad lesions on my upper gums and the pain from intercourse during intercourse is unbearable. So now I have two different Doctors and now I am breaking out on my wrist, forearms and shins. I need one doctor who could take care of all my breakout areas instead of three. I also have fibromyalgia and lupus, I am 63 years old.

Was this comment helpful?Yes
Comment from: chopperone, 35-44 Male (Patient) Published: May 30

My lichen planus started 3 months ago with bumps on my scalp that became uncontrollably itchy. I really didn't give any thought to it because I always shave my head bald and accumulate small bumps from time to time. But this time it was different, though the bumps went away, I noticed brown spots on my scalp. Finally last month I was diagnosed with lichen planus. We've controlled the itchiness for now, so we're working on the brown spots.

Was this comment helpful?Yes
Comment from: Duffy, 65-74 Female (Patient) Published: March 23

I have had lichen plan us for about 4 to 5years. I use calmoseptine to relieve the pain and itch. It doesn't cure anything, but it feels much better. It is used for diaper rash so it is safe for the vulva. I found that rinsing my mouth with salt water everyday helps with the bleeding gums and sore cheeks. My doctor said today that he wished he could find a cure and name it after me. There is nothing new on the market for those of us with this nasty condition. A support group would be a great idea, since I know no one else with this. Most people and many doctors have never heard of it. Good luck out there.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Lichen Planus - Describe Your Experience Question: Please describe your experience with lichen planus.
Lichen Planus - Diagnosis Question: What types of tests or exams led to a diagnosis of lichen planus?
Lichen Planus - Treatment Question: What forms of medical treatment, including medication, did you receive for lichen planus?
Lichen Planus - Prognosis Question: Discuss your experience with lichen planus. Have you had any recurrences?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.