Patient Comments: Lichen Planus - Symptoms and Signs

What were the symptoms and signs of your lichen planus?

Comment from: Gharris, 45-54 Male (Patient) Published: December 15

I have experienced many reoccurring episodes of lichen planus over the years. Very painful and frustratingly hard to get diagnosed and treated. Finally treatment success with ultra violet light treatment. It is the cure and after a few treatments seems to diminish the itching. I have been free now for 12 years.

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Comment from: Rosie1, 65-74 Female (Patient) Published: August 03

I have had lichen planus for eight years, I recently found a cure for the itching, and since using it I have had no itching. In the past I have torn my skin to pieces on my ankles and lower leg, no sleep and swelling on my ankles as well. I don't say it's a cure but it does stop the swellings, they have gone down and no itching. The treatment is with a wash called Difflam, gargle with it but do not swallow, gently rub the liquid onto the skin area affected. Good Luck, I hope it helps you.

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Comment from: Trish831, 45-54 Female (Patient) Published: August 07

I was diagnosed with lichen planus in the summer of 1977. I can't remember what the medicine was called but along with it I had to bathe in vinegar 3 times a day. They didn't know much about it and it was diagnosed by a dermatologist. It cleared up in 6 weeks and I had no recurrence of the scaly rash on my arms. However, I recently started getting vertical ridges on my fingernails and when I googled it I found it could be a symptom of lichen planus. Something to ponder.

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Comment from: malta, 55-64 Male (Patient) Published: January 08

Lichen planopilaris is one of the worst condition you can have when you visit any doctor. They give many cures but nothing cures the condition. My scalp has been itching for six years and the hair is falling every day.

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Comment from: 55-64 Female (Patient) Published: October 31

I am 59 years old and have had lichen planus for about 9 years. I am still waiting for it to go away. It started first in my mouth and my gums looked like lobsters. An oral surgeon diagnosed me with a punch biopsy. My dentist prescribed Protopic ointment which was prescribed to another patient of his who went to the Mayo clinic. I think stress definitely impacts the lichen planus. I have a doctor who is board certified in allergy and dermatology. We have tried cortisone oral rinses with limited success. The lichen planus has affected my gums to the point a couple of molars are ready to be extracted. I get teeth cleaned with sedation every three months. Avoiding all spicy foods or citrus helps. The pain and burning in my mouth varies in severity from barely noticeable to moderately severe. My lips burn and throb in addition to gum pain. Shortly after the gums became painful around 2002, I started to have the severely itching breakouts on my legs, arms, torso. I can't avoid scratching these things, and they bleed like crazy. I have taken periodic oral doses of steroids which help for awhile. Local injections of a lidocaine/steroid mixture seem to help the most to calm down specific areas. When the rash spots heal they turn a darker color. These fade very slightly over time. My dermatologist has a very kind PA who gives me a handful of injections when needed. Sleep was a big problem due to the itching until my doctor gave me a prescription for Vistaril pills. I also go through bottles of Benadryl (diphenhydramine).

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Comment from: Silverfox44, 65-74 Female (Patient) Published: August 17

Both my sister and I suffer from lichen planus. We both have it particularly on our backs. When I had it in my mouth a doctor told me to use Cepacol and it worked! At present I use a lotion bar made by Paradise Potpourri on the little blisters in my groin and it stops the itch and makes them go away for a while. A plain vinegar douche stops the itch in the vagina for at least a day or two. But, it does dry you out. I used apple cider vinegar on a paper towel on my back and the hard, crusty skin came off - it also gave me some relief. - My lichen started with a bug bite on my back. I drink 1 teaspoon of apple cider vinegar in an 8 ounce glass of water daily. It makes you burp - but it relieves the suffering. I hope this helps someone out there.

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Comment from: CDZ, 55-64 Female (Patient) Published: June 04

I am 58 year old and have suffered with lichen planus for many years. The lesions are on the left side of my mouth on my upper gums. I have smoked on and off over the last few years and that doesn't not seem to affect my breakouts (yes, I know I am an idiot for smoking for all of the reasons). I have discovered when brushing my teeth it is much better to not use toothpaste and to use warm water on my brush. I use a very small amount of baking soda. Stress is definitely the trigger for severe ulcers. I have been told by a specialist at a university medical center to cut out all sugar from my diet. I am on my fourth day of sugar withdrawals.

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Lichen Planus - Describe Your Experience Question: Please describe your experience with lichen planus.
Lichen Planus - Diagnosis Question: What types of tests or exams led to a diagnosis of lichen planus?
Lichen Planus - Treatment Question: What forms of medical treatment, including medication, did you receive for lichen planus?
Lichen Planus - Prognosis Question: Discuss your experience with lichen planus. Have you had any recurrences?

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