Patient Comments: Lichen Planus - Describe Your Experience

Please describe your experience with lichen planus.

Comment from: Lesa, 45-54 Female (Patient) Published: August 05

I have had lichen planus for about 4 years but was just recently diagnosed. Steroid pills and cream offered little to no relief, and my allergist started me on a prescription of an immune suppressant medication called cyclosporine about 2 weeks ago. My rash is almost gone, along with the itching, and for the first time in years my skin is beginning to look normal again. Could not be happier!

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Comment from: Sweetne, 35-44 Female (Patient) Published: July 08

My dermatologist did two biopsies of areas of my skin due to dark spotting on face, arms, and chest. One biopsy showed lichen planus. One showed lupus of the skin. I tried steroid shot, Plaquenil, and cream, did not work. I went to see a panel of 20 or so dermatologists who said it was one or the other. I put on sun screen all day. I put on Tri-Luma and Finacea every day and night. I still have new spotting. Dermatologist has no new suggestions.

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Comment from: LP, 65-74 Female (Patient) Published: April 21

I have lichen planopilaris. No medications or treatments helped. The best thing for me was to eliminate chemicals on my scalp, e.g. shampoos, cream rinses, chlorine, and all hair products. I wash my hair with baking soda and chlorine-free water. I had a whole house water filtration system installed in my home. After doing this, my dermatologist said she had never seen my scalp look so good and that I no longer need to see her. I do take medication to minimize stress.

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Comment from: lorraine, 45-54 Female (Patient) Published: February 24

I am 51 years old and during Christmas 2014 I started getting little blister like spots all over my legs ankles and feet. Doctors gave me several medications and creams but nothing worked. Finally a doctor diagnosed me with lichen planus and I am currently waiting to see a skin specialist. All my life I have grown up never getting spots so I was really worried when these started popping up and to say they are painful is an understatement. My job as a school cleaner means I am on my feet all the time and the bottom of my feet are very painful. Just recently the top of my right foot swelled up to twice its size due to an infection through my scratching which has now caused cellulitis. It is nice to know I am not alone with this condition but it has taken over my life.

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Comment from: Lpool, 55-64 Female (Patient) Published: February 19

I first started with a red itchy rash on my forearms 9 years ago. It lasted a couple of weeks then disappeared. It recurred about once or twice a year for a couple of years and despite creams and lotions seemed to run its course then disappear. After a particularly bad outbreak I went to my general physician (GP) and he referred me to a dermatologist but he didn't know what it was. Every time it occurred couldn't get an appointment with him before it went. Eventually I had tests done over a week using light therapy to see if they could induce an outbreak with UVA lights thinking it was the sun. After one biopsy they said I had discoid lupus or thought it was. It then disappeared for about 2 years, in between, that dentist diagnosed lichen planus in my mouth; did they not think the two were connected! Another 9 months until I could see a different dermatologist who said that the bald patches were old and had probably occurred during previous outbreaks but I had not noticed. I was informed that the hair follicles were damaged and would not grow again. This dermatologist then said it wasn't discoid lupus, it was lichen planus (LP). I tried cream and lotions but the hair loss continues. I am now on methotrexate 5 tablets and to be honest I don't think it is doing any good. They can't bring hair back, I just want them to help me not to lose anymore but don't think they can. I am one of the lucky ones I know that at the moment I can cope with it in my mouth, and lucky I have a good head of hair and my hairdresser helps me to cover some of the bald patches, but I can't believe that worldwide there is no answer; 9 years later I am no wiser.

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Comment from: VaibLP, 19-24 Male (Patient) Published: January 28

I was diagnosed with lichen planus (LP) one and half years ago, I had just graduated from college and had started working with a multinational corporation. Before I could experience my bachelor life I started developing lesions on my leg and within 2 months it got spread all over my body. As all new LP patients do, I consulted a dermatologist who prescribed me steroids, immunosuppressant and anti-inflammatory tablets, it showed great results with all lesions getting flattened and left with scars. I continued these medicines for about 8 months. After 8 months it started giving problem, I was suffering from side effects of these tablets and stopped their use. Then I read about a homeopathic clinic somewhere on online forum, I visited their clinic and started their medicine. Initially it was normal but after the effect of steroids and anti-inflammatory drugs wore off, my lesions returned with revenge. In spite of that I continued with only homeopathic medicines and it took me 4 months to finally get to see its effects with all scars fading. I have been on homeopathic medicines since 6 months and I think it is working, a little bit slower but better than steroids!

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Patient Comments

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Lichen Planus - Symptoms and Signs Question: What were the symptoms and signs of your lichen planus?
Lichen Planus - Diagnosis Question: What types of tests or exams led to a diagnosis of lichen planus?
Lichen Planus - Treatment Question: What forms of medical treatment, including medication, did you receive for lichen planus?
Lichen Planus - Prognosis Question: Discuss your experience with lichen planus. Have you had any recurrences?

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