My daughter, who is now 26, had Kawasaki disease at around 18 months old. She was hospitalized for 10 days and had IV therapy, aspirin dosing, EKGs, and regular platelet drawings for 6 to 8 weeks as follow-up. She was released with no further follow-up and with a normal prognosis. She has always been very healthy, exercises, is a marathon runner, has a healthy diet, etc. She works full-time and lives a normal lifestyle for one her age. She has had a few symptoms off and on that can be described as arthritic pain. I told her it could be a consequence of the Kawasaki, since there does not seem to be any other explanation. Has anyone ever heard of this happening as an adult from childhood Kawasaki illness?

I had Kawasaki disease as a child. I had a high fever, rash, swollen red hands and feet. I was treated and was fine. No one told me or my family to have an echocardiogram yearly. I am 34 now and have premature ventricular contractions and other symptoms similar to lupus. I had blood drawn today to check for lupus. I never thought to mention to any doctor that I had Kawasaki disease as a child.

I was diagnosed in 1966 at age 1 1/2 with Stevens-Johnson Syndrome, but I now feel it was actually Kawasaki Disease. I had the persistent very high fever, peeling of genitals, hands, and feet, and had a 'heart murmur' a year later, at age 3. Mitral valve prolapsed was discovered just a few months ago (I'm now 46). The reason I am writing is to alert anyone diagnosed w/Stevens-Johnson before the mid-seventies that they might actually have Kawasaki Syndrome. SJS always made me worry that there was some drug to which I might be allergic. Now I know that I need to get regular EKGs, as does anyone else w/Kawasaki Disease.

My daughter started with rash and peeling of the skin on her hands & feet. She then had muscle weakness, pain in her neck, and finally aseptic meningitis. She was treated with immunoglobin and aspirin and survived, but was near death for a few days.