Interstitial Cystitis (IC)/Painful Bladder Syndrome (PBS)

  • Medical Author:
    Melissa Conrad Stöppler, MD

    Melissa Conrad Stöppler, MD, is a U.S. board-certified Anatomic Pathologist with subspecialty training in the fields of Experimental and Molecular Pathology. Dr. Stöppler's educational background includes a BA with Highest Distinction from the University of Virginia and an MD from the University of North Carolina. She completed residency training in Anatomic Pathology at Georgetown University followed by subspecialty fellowship training in molecular diagnostics and experimental pathology.

  • Medical Editor: Jay W. Marks, MD
    Jay W. Marks, MD

    Jay W. Marks, MD

    Jay W. Marks, MD, is a board-certified internist and gastroenterologist. He graduated from Yale University School of Medicine and trained in internal medicine and gastroenterology at UCLA/Cedars-Sinai Medical Center in Los Angeles.

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What is the prognosis (outcome) of interstitial cystitis?

IC/PBS is a chronic condition that is characterized by periods of relapse and remission. Doctors do not fully understand why the symptoms worsen at particular times or disappear and then reappear months or years later. Symptoms may be mild or severe and may vary in intensity even in the same individual over time. There is no cure for IC/PBS, and treatments are directed at reducing the severity of symptoms.

There has been no treatment that has been shown to be effective in slowing the progression of the disease or in preventing recurrences.

Is it possible to prevent interstitial cystitis?

Because the cause is poorly understood, there are no known strategies for preventing IC/PBS. However, some self-care measures may help reduce the severity of symptoms (see section on home remedies).

Where can people find more information about IC/PBS?

Interstitial Cystitis Association of America
110 North Washington Street, Suite 340
Rockville, MD 20850
Phone: 1-800-HELP-ICA (435-7422) or 301-610-5300
Fax: 301-610-5308
Email: icamail@ichelp.org
Internet: http://www.ichelp.org

American Urogynecologic Society
2025 M Street NW., Suite 800
Washington, DC 20036
Phone: 202-367-1167
Fax: 202-367-2167
Email: augs@dc.sba.com
Internet: http://www.augs.org

European Society for the Study of Interstitial Cystitis
http://www.essic.eu

REFERENCES:

Hanno, P.M., et al. "AUA guideline for the diagnosis and treatment of interstitial cystitis/bladder pain syndrome." J Urol 185.6 (2011): 2162.

United States. National Kidney and Urologic Diseases Information Clearinghouse. "Interstitial cystitis/painful bladder syndrome." <http://kidney.niddk.nih.gov/KUDiseases/pubs/interstitialcystitis/index.aspx>.

Medically Reviewed by a Doctor on 6/8/2016

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