I was diagnosed with ITP in my late 20's also after leukemia was ruled out. Symptoms started with rash (peticiae) on my feet--thought it was from the wool socks. Once I developed lesions on my tounge I thought it was a good idea to see an MD. There was lots of fear expressed about internal and the potential for excessive bleeding; however, after treatment with prednisone I never had any re-occurance of the condition. I have never been able to give blood because of the history of ITP. Sometimes I wonder if it was misdiagnosed and really was scurvy because I was doing a lot of backpacking and likely very deficient in vitamin C.

My 5-year-old grandson suffers from ITP. An oncologist at first was sure he had leukemia, but a bone marrow biopsy showed that it was not leukemia, but was ITP. He suffers from intense leg pains after an active day. He is chronically on Children's Tylenol. His grandfather has a bleeding disorder which they do not relate to ITP. He has to be home-schooled because of the risk of infection from other children. He is an otherwise very normal little boy who is very active and we are hoping that this condition will end soon so he has a normal life with school and sports included.