Patient Comments: Hypersomnia - Experience

Please describe your experience with hypersomnia.

Comment from: Stacy, 35-44 Female (Patient) Published: May 12

It took 4 doctors and nearly 10 years before I finally got an accurate diagnosis for my uncontrollable sleepiness or hypersomnia. I have been on the highest doses of Adderall and Adderall XR a person is allowed to take, for the last 5 years and though it helped in the beginning, it almost doesn"t affect me anymore. There should be a way to retrain a part of the brain to fix this condition. More research is needed.

Was this comment helpful?Yes
Comment from: Deb_5, 35-44 Female (Patient) Published: January 21

For the past two years I have been tired during the day. I have no energy and have fallen asleep while at work. I have also fallen asleep while driving. I finally went to my primary doctor and he sent me to a sleep specialist doctor, who ordered me to take a sleep study test. That came back fine, I don't have a sleep apnea, but he noticed that I have restless leg syndrome. I have been on medicine for RLS but I have still been tired. My legs have not been bothering me while I sleep at night yet I am very tired during the day. So the doctor sent me for another sleep study test that lapsed into the nap study. Today I get the call that from the nurse and she tells me that I have hypersomnia. I am shocked that there is a diagnosis for this and you can actually treat it. So I am hoping in the next week or so, after taking the medicine they prescribed me I will start to feel better.

Was this comment helpful?Yes
Comment from: Kathy, 55-64 (Patient) Published: November 08

I have always needed more sleep than other people. Even after sleeping 10 or 11 hours I would have trouble waking up and hardly anything wakes me up. I've slept through many loud thunderstorms. Now retired, my hypersomnia is slightly lessened. I am from a large family and everyone except for my mother slept real soundly and slept for long hours.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Hypersomnia - Causes Question: What caused your hypersomnia?
Hypersomnia - Treatment Question: What types of treatment, including medication, did you receive for hypersomnia?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.


Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.