Got kidney stones in September - passed those - got more in November had them blasted - just went through another round of stones in January - my urologist suspected a hyper-parathyroid - he was right. I have a terrible back ache, irritable, very tired, achy all over, no memory - cannot concentrate...GERD. Going to an ENT who can help me - the endocrinologist I went to was worthless. Lots of them never see a hyperparathyroidism case for years at a time - so check out your doc before you go.

I was diagnosed with a tumor on my parathyroid. My calcium levels had been high for years, but none of my doctors took the time to check it out until I moved to Florida. It did not show up on the sestamibi scan, so do not take the radiologist word it's not there. Symptoms: sleeping 14 hours a day and still tired, severe memory loss (my husband said he repeated things many times and then I would ask again as if we had never discussed it), 1 - 2 kidney stones per month. Took lots of calcium after the tumor was removed, I'm 2 1/2 years post-op and feel great.

I have been diagnosed with a parathyroid adenoma and am having surgery in 2 weeks. I am always tired, decreased energy level, have had many kidney stones for 4 years,4 were large enough to require lithotripsy, my concentration is poor, my short term memory is bad, have lots of joint pain, osteoarthritis in my hips, GERD, and hypertension. I have normal calcium but on the high end of normal. I am a 61 year old female. I also have gall bladder stones; do not know if this is related to Hyperparathyroidism. My PTH was also elevated.

I had parathyroid surgery 2 years ago. It took just over a year after I was diagnosed with elevated calcium levels till I had the surgery. I was achy all over, high blood pressure (though I still have very hard to control blood pressure), just did not feel right. I had a contrasting CT scan, which showed nothing. Finally I talked my Dr into sending me to a surgeon and he agreed that exploratory surgery needed to be done and he found a large mast on my upper right parathyroid. I feel better, but now my health seems to be declining. I am in the process of waiting for my 24 hr. urine results for an adrenal problem.

My daughter has had severe bone pain, GERD, irritability, weight loss of 20 pounds (she is only 102 pounds now) depression, lethargy, and migraines. In early March she had several fainting episodes, and was in the ER twice. I insisted her MD do more tests. He found a high calcium and high PTH level. Her PTH was originally high, in the 160s, then 145.8. She has seen an endocrinologist, who just keeps doing more tests. I must add her vitamin D level originally was only 9, and her recent D level was 19 – still low. She has been taking 2000 IU's of D a day since March. Her bone scan showed some thinning of her bones. The MD wanted to wait to see how she does before going to a surgeon. She had a sestamibi parathyroid scan but we don't know the results. He wants to do more tests. I am very worried, because she had a couple spells in the middle of the night, where she felt like she would faint. We went to the ER again for a workup and now she is wearing a Holter monitor. I think she should have the surgery soon. I don't know why the endocrinologist is dragging his feet.

I am 52, but began getting kidney stones when I was young. I had gallstones as well. I've experienced UTIs, kidney cysts and a mass, heart problems, blood pressure spikes, joint pain and osteoporosis (broke my L1), extreme fatigue, low immune (sick frequently), weight gain, depression, lack of energy, can't concentrate or remember, and have high calcium. I have a number of family members on my mother's side (mostly female cousins and aunts) with similar problems. One of my relatives also has hyperparathyroidism, another who has had open heart surgery, and all have had bone loss. I'm waiting for my appointment to see an endocrinologist. I'm convinced it's familial hyperparathyroidism. And I've heard that osteoporosis is reversible once the parathyroid is removed.