Patient Comments: Hypermobility Syndrome - Cause

Please share the cause of your hypermobility syndrome.

Comment from: Cheermomred, 45-54 Female (Patient) Published: December 15

I was recently diagnosed with Ehlers Danlos syndrome. I find it to be a very painful and so little known about it.

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Comment from: Kimbo, 25-34 Female (Patient) Published: May 16

I am 26 years old and was diagnosed in august 2011 with joint hypermobility syndrome. I have dislocated my right shoulder twice and have now undergone surgery to try and fix it. The bones in my left foot have collapsed and I now have to use insoles in my shoes. I have pain in my knees and elbows daily. The doctors don't take me seriously but I am persistent and have made a break through with my needs being assessed.

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Comment from: Jan, 35-44 Female (Caregiver) Published: November 08

My 7 year old son was diagnosed with hypermobility syndrome 3 years ago. He is in constant pain and needs spoon fed at dinnertime, as his fingers get so painful he is unable to hold a fork. I have been severely let down by doctors in the past, with one G.P. telling me he was just a bit bendy. He has now been referred to a pediatric consultant and is waiting for an appointment. He also wets the bed at night. I was wondering if this was connected, as his G.P. thought it was unlikely. But as you can imagine, I don't hold great faith in his opinion.

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Comment from: arieljane, 13-18 Female (Patient) Published: March 15

I have been diagnosed with hypermobility because it caused my feet to create bunions. I've always been able to do the double-jointed stuff with my fingers. I love running, but can't really do it anymore because every time I do, my knees or feet hurt. My hands also hurt a lot and I tend to drop things for no reason. My shoulders get dislocated and painful. How do you deal with the pain? I miss running like I used to, but every time it ends up hurting.

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Comment from: Jonsie, 35-44 Female (Patient) Published: July 27

I have suffered with Hypermobility Syndrome since I was a child but it was only diagnosed last week. I have had numerous strains, sprains, ruptured tendons, tendonitis, bursitis, plantar fascitis, and associated problems including endometriosis, depression, anxiety, migraines, IBS and chronic sinusitis, not to mention the growing pains as a child! I remember telling a doctor when I was in my 20s that I wish someone would look at me as a whole and not individual ailments as I was sure that there was a connection. I now have early stage osteoarthritis in my knees and shoulder, which may not have happened if I had been diagnosed earlier.

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Patient Comments

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Hypermobility Syndrome - Symptoms Question: What were the symptoms of your hypermobility syndrome?
Hypermobility Syndrome - Treatment Question: What treatment have you received for hypermobility syndrome?

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