Patient Comments: Hyperkalemia - Diagnosis

Was your doctor able to quickly diagnose your hyperkalemia, or was it difficult to hone in on the disorder?

Comment from: Jilllee, 45-54 Female (Patient) Published: March 06

I was diagnosed with Cushing's syndrome in 2006. I had my left adrenal gland removed and felt better for two months. I then started having Cushing's syndrome symptoms again and had my right adrenal removed in February of 2008. Since surgery, I have been hospitalized three times with hyperkalemia. My potassium levels were 10, 8.8 and 8.0. I had to have dialysis five times and the last time I was hospitalized, I crashed twice. Since then, my endocrinologist can't figure out what level of prednisone to put me on, and I feel like there is no end to feeling sick.

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Comment from: Larry, 55-64 Male (Patient) Published: March 06

My potassium level reached 7.5 (severe), and I had almost constant weakness in my legs. I could barely walk. I had a recurring nauseated feeling in my stomach. I had no energy accompanied by an overall exhausted feeling. I had no appetite. Hyperkalemia was detected through a blood test.

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Comment from: Msashua, 45-54 Female (Patient) Published: January 14

My potassium is 5.2, picked up in blood work last week. I have been type 1 diabetic for 48 years. My endocrinologist says my kidney function tests are perfect, but she wanted me to lower potassium intake via diet and stop using one medicine that may be affecting potassium level. She is telling me that this is not something for me to get freaked out about but I am taking this very seriously. She said the blood pressure medication I take could be an affecting factor in the elevated potassium but it provides the added benefit of protecting my kidneys from diabetic side effects. I hope this diet change does the trick!

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Comment from: newsjunky, 75 or over Female (Patient) Published: May 20

I was taking spironolactone (50 mg) and started getting dizzy, passing out, was weak and nauseated, and had no appetite. Sometimes when I started to walk, my knees would start a jerky dance-like movement, causing me to fall. I lost more than 30 pounds. My nephrologist and family doctor didn't seem concerned. I had regular blood tests, but they did not check my potassium levels. Fortunately, my arthritis doctor checked it and became very alarmed. I feel like she saved my life. When I stopped the meds it took a while, but now I feel back to normal.

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Comment from: Dorie, 45-54 Female (Patient) Published: August 07

I have hyperkalemia and have had it for over a year. What they do is put me on Lasix and nothing else. The doctors (and I have been to a lot of them) just don't care to pursue the end results. I've lost over 30 pounds and look like skin and bones, still no help from the doctors. We never get any answers from the endocrinologists. I have the heart palpitations, slurred speech, my hands are useless and when it's bad I'm bedridden because I can't walk

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Comment from: romo, 55-64 Male (Patient) Published: April 15

I had no symptoms at all with my hyperkalemia. I had a liver transplant, so I go and have blood drawn every week. I went and had blood taken, and they asked me to stay for the results, so I did. When the doctor called me in, she told me she was admitting me into the ICU. I asked why. I said I feel great, in fact, the best since my transplant and I was ready to go for my eight-mile walk I do four times a week. She told me about my potassium level and said it was high. If it wasn't for my blood work, I would not have known.

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Comment from: 45-54 (Patient) Published: March 06

I had been taking several medications for high blood pressure, including a diuretic, Norvasc 10 mg, metoprolol, and an ACE inhibitor. I had a second episode of irregular heartbeat and went to hospital where I was found to have hyperkalemia. My symptoms were/are tingling/numbness in lower extremities, sweating, and a slight shortness of breath.

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Comment from: 45-54 Male (Patient) Published: August 06

I woke up one morning, and I had a loss of balance and was unable to stand without leaning or holding onto something sturdy. I had weakness in my lower torso and my hands. A blood test determined I had hyperkalemia. I was told to stop taking my naproxen and lisinopril. I started taking a hydrochloride medication immediately to counteract the potassium in my system.

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Hyperkalemia - Symptoms Question: What symptoms did you experience with your hyperkalemia?
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