Patient Comments: Hypercalcemia - Describe Your Experience

Please describe your experience with hypercalcemia.

Comment from: Dee, 55-64 Female (Patient) Published: August 03

My doctor asked me years ago if I was drinking a lot of milk because my calcium was a little high. He should have immediately done a PTH blood test to check the parathyroid. For years I couldn't figure out why I was so irritable, my bones hurt, my heart raced and my blood pressure was high, etc. Finally I told him to do a simple PTH blood test and he also ordered a sonogram. It did turn out to be hyperthyroidism. I had surgery and had the benign tumor removed. The calcium levels came down almost immediately and I am a new person! If you are told you have hypercalcemia tell your doctor that you want a PTH blood test. High calcium in the blood is not normal even if it's a little high.

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Comment from: cookieb, 75 or over Female (Patient) Published: August 15

I began having depression due to extreme pain in my bones, felt dizzy, and had calcium deposit in my shoulder. I went to my tribal clinic where the doctor said I had hypercalcemia, my blood calcium was in the high range, and he believed I had hyperparathyroidism. I told my regular doctor what he said, and well, my regular doctor said my tribal doctor was wrong. But after about a year of nagging he prescribed a scan, and one adenoma was found on one parathyroid. But because of my age nothing was going to be done. I decided to dump him and take responsibility for myself, got into hospital and within a month had 3 1/2 parathyroid glands removed due to tumors. After about 2 months I was all recovered and felt reborn. Today I am 81 and no problems.

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Comment from: linnie, 65-74 Female (Patient) Published: July 01

I am at my wit's end with calcium levels almost always elevated, from 10.6 to 11.0, and an occasional 12.0. This hypercalcemia has been going on for about 10 years! I have seen 2 endocrinologists who simply say it must be my normal. My general physician (GP) is still telling me my levels are making me sick. I am so tired of feeling sick; upset stomach and nausea always, headaches now, aches, depression, fatigue, loss of appetite and loss of interest. I just never feel right. My level last week was 12.0. I have had breast cancer. Last year I had a 24 hour calcium urine test. It was normal. My GP thinks he has covered everything. I just can't stand to live like this. I have tried antidepressants, no luck. Also, in answer to another post taking lithium, it definitely elevates calcium levels.

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Comment from: Nadine, 35-44 Female (Patient) Published: June 16

I encountered my first kidney stone on our family trip to San Francisco and didn't have a clue what I was experiencing. The pain finally subsided and I passed the stone without evening know what I had. That was the start of a two year journey to figure out what was causing my kidney stones. I started having them once a month and as time progressed I was visiting the emergency room 2 or 3 times a month to have the stones removed; ouch! I saw every urologist there was in my city and none of them ever thought of a diagnosis for me. It wasn't until my regular doctor went on leave I saw her stand-in, at my wits' end saying I can't live this way with numerous trips to the emergency to have stones surgically removed; I was exhausted, depressed, and had sore joints! She immediately said I think I may know what's wrong with you and sent me for a blood test; a box on the form that could have been marked off so easily. It came back with hyperparathyroidism; finally a diagnosis. But it took an emergency ride to the hospital 6 months later to have them finally remove the tumor on my gland. With hypercalcemia the calcium was at toxic levels in my system and was starting to shut down my kidneys. Once they removed the tumor I finally felt a bit better but it really took close to a year to feel normal again. Get second or third opinions if needed! Good luck to all.

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Comment from: Im_the_mom, 45-54 Female (Patient) Published: May 07

I have hypercalcemia, with a calcium level of 10.8. It has been elevated, anywhere from 10.4 to 11.0 for several years. In my most recent test vitamin D is quite low, at 19 with a range of 30 to 100 being normal. My PTH is 22 with a normal range of 12 to 77. I had a total thyroidectomy 8 months ago, and am on 150 mcg levothyroxine. I am fatigued, have joint pain, body aches, memory issues, constipation, and some slight balance problems. I'm a 52 year old female, have never had cancer, and am tired of feeling bad. I can't find any information on a condition that would cause low vitamin D, low normal PTH and high calcium.

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Hypercalcemia - Symptoms Question: What were the signs and symptoms associated with your hypercalcemia?
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