Patient Comments: Hypercalcemia - Describe Your Experience

Please describe your experience with hypercalcemia.

Comment from: Audrey, 75 or over Female (Patient) Published: January 21

My calcium in a normal blood test runs usually 2 points above normal range. This has been constant for about 10 years. I wonder if this is harmful.

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Comment from: kitty, 75 or over Female (Patient) Published: January 24

For a long time I had been feeling drained. I was also under a lot of stress for a long time and when I developed what I termed flu symptoms (achy bones, headache, extreme sleepiness,) except for any respiratory or fever symptoms I was rather stumped, but did not care since all I wanted to do was sleep. I had some nausea, loss of body control in that I staggered around like a drunk and a general feeling of fatigue. I did not eat much, mind was out to lunch until my children drug me into the emergency room. Spent 5 days in hospital on double saline drips and my kidneys cleaned my blood. Calcium level was extremely high. Has been normal since. Maxide seems to be the fault, a diazide diuretic. Now, no calcium supplements, and I am on another diuretic.

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Comment from: coookemstr, 45-54 Male (Patient) Published: August 17

I spent most of the month of July in the hospital. It started out with a 5mm kidney stone in the right kidney and I know have three to four more smaller ones in the same kidney. I am 52 year old male with no family history of kidney stones. On July 2, I was admitted to the hospital with severe tremors that escalated into full body convulsions. The doctor said that it might be conversion disorder with Hypercalcemia underlying. My Primary doctor disagrees with the conversion disorder as she has told me that my calcium levels are so high they are almost off the scale. I have also had three shoulder surgeries on the right shoulder due to excessive growth of bone spurs. I am currently being treated with Xanax three times a day to help control the tremors while I await further testing.

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Comment from: calgal, 55-64 Female (Patient) Published: June 22

My internal medicine doctor diagnosed me with hypercalcemia this past week. I can't believe there's anything wrong because I feel as good as ever! My doctor kept asking if I had pain anywhere and did a bone scan, which showed nothing. Now my doctor's ordered a bone density test. I've been on lithium for 14 years or more and am wondering if that has anything to do with it. My doctor has mentioned surgery, but I'd like to know if there's cancer anywhere in my body that may be causing the high level. So, for now I feel fine with no symptoms, just a high calcium level, which I thought was to be desired. I hope everything will be ruled out before surgery for this.

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Comment from: MJ in St Pete, 45-54 Female (Patient) Published: June 18

I was diagnosed with hypercalcemia several years ago. Turns out it was the result of a parathyroid adenoma, or parathyroid tumor. I had the tumor removed, and it took awhile for the calcium level to regulate. After the removal of the bad parathyroid, I had to take calcium supplements by the clock until the remaining parathyroids started working. Was very touch and go, I felt so sick, but now I'm fine.

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Comment from: Sylvia R, 55-64 Female (Patient) Published: November 05

Serum calcium is 10.0 and Vitamin D is 127. Currently taking Vitamin D 50000 unit oral capsule due to a deficiency. Have a family history of kidney stones, nephrosis, and heart disease. I also have hypothyroidism that is being treated but continues to be an issue (tests still indicating values are not normal). I also have numerous calcifications in breasts which are being monitored. Stopping Vitamin D.

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Comment from: 55-64 Female (Patient) Published: September 24

I had a calcium level show up on lab tests three times in the high error range. Which isn't very high at all. I didn't think I had any symptoms, except that I remember my mother was always telling me to stop rubbing my legs. My legs felt the same way as when I was young and had played too hard. My parents would have called it growing pains. It made my legs feel better to rub them. I also noticed my chest was very sensitive when I did monthly breast exams for cancer. It turns out that I had an adenoma of one of my parathyroid glands. Later, I discovered a male cousin had adenomas on each one of his four parathyroid glands. I had surgery to remove the adenoma and had immediate relief following that surgery for the constant leg aching I had been experiencing for two years.

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Hypercalcemia - Symptoms Question: What were the signs and symptoms associated with your hypercalcemia?
Hypercalcemia - Treatment Question: What was the treatment for your hypercalcemia?

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