Patient Comments: Hydrocephalus - Causes

What was the cause of your hydrocephalus?

Comment from: nannybird19, 75 or over Male (Caregiver) Published: July 05

There was not any particular cause to my hydrocephalus, I felt my husband was not behaving as usual, he lost 30 lbs. very quickly and he had cancer of the duodenem, 20 yrs. ago, which led me to believe it was a reoccurance. After going back to his doctor, seeing many specialists, about a year went by without any diagnosis, I finally took him to my internist and after a few months she diagnosed him with normal pressure hydrocephalus. Sent him to a neurosurgeon he put a shunt in, seems to be working OK.

Was this comment helpful?Yes
Comment from: em, 19-24 Female (Patient) Published: April 22

I am 23, I have Spina Bifida. I was diagnosed with Hydrocephalus at about 10 days old; after closing my back at birth. I had my first blockage at 3 and have had 10 more between 13years old and 22. The space of time I get between surgeries was 4 years (16 years old then 20) down to 10-13 months. I have seemingly permanent daily issues with short term memory. I've learnt not to over-react when something goes missing however coping with family trying to cope, not understanding what this is like is very hard sometimes.

Was this comment helpful?Yes
Comment from: Jamie, 45-54 Male (Patient) Published: April 20

I am 49 years old have hydrocephalus and was originally diagnosed before I was 1. They operated and put in a rubber tube between my third and fourth ventricle of my brain. The operations resolved most of the symptoms and I have not had to revisit the Issue. The only long term consequences have been I am quite physically uncoordinated and I have a particularly bad memory for names. On the plus side I am pretty good with numbers. I graduated from college and earned a Ph.D. in biochemistry and have spent 15 years doing Biological research.

Was this comment helpful?Yes
Comment from: grandma, 55-64 Female (Patient) Published: February 18

I am now 60, had my first shunt at 15, they thought was congenital at the time. At 45, the shunt had to be replaced, the symptoms, falling, headaches, etc. The real thing no doctor told me at 59, I started having seizures, the buildup of scar tissue caused it. I wish the doctor would have said something.

Was this comment helpful?Yes
Comment from: tweetybirdnurse, 45-54 Female (Patient) Published: July 12

I have hydrocephalus and I was born with it. I am now 47 years old with no shunt. And I'm not mentally challenged. I also had two children who are doing fine.

Was this comment helpful?Yes
Comment from: Chrissymarie, 35-44 Female (Patient) Published: May 07

I am 37 years old and have had hydrocephalus since I was about 8 years old. That's when I had the shunt put in. I have had the same shunt since then. But I have been having very bad headaches. I go to my doctor on Wednesday, so I am hoping it isn't anything bad. I also have neurofibromatosis.

Was this comment helpful?Yes
Comment from: Keith, 55-64 Male (Patient) Published: May 07

I have all the symptoms of hydrocephalus. Doctors over the years have come up with bipolar, lupus, thyroid problems � all as a possible reason. They did find that I have a tumor of the choroid plexus. If it wasn't for my dogs, I would have given up. The mental torture and pain is incredible. Doctors that don't understand hydrocephalus kick you under the bus.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Hydrocephalus - Describe Your Experience Question: Please describe your experience with hydrocephalus.
Hydrocephalus - Signs and Symptoms Question: What were the signs and symptoms associated with hydrocephalus in someone you know?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

Health Solutions From Our Sponsors