My husband was diagnosed with Huntington disease in 2007, although I have been seeing signs of the disease for at least seven years prior to that. He was 45 years old when diagnosed. We also didn't know it was in the family due to his father refusing to see a doctor for his unusual behaviors, moods, and movements until 2006. Most concerning is my husband's change of behavior -- anger -- directed at me and my side of the family. He gets belligerent and physical, and I don't know what to do. He's on medication -- Seroquel and Zoloft -- to help and is followed closely by our doctor. We feel (me and our children and family) that we walk on eggshells most of the time, not knowing when we might say something that sets him off. It's very hard. We really don't know what to do to "keep the peace." Apathy is another challenging area -- he only does the things he wants to do -- which isn't much. He sits around the house a lot or helps another relative but does very little around our house. The obsessive compulsivity displayed is troublesome as well. He will get on an idea/action and it will be very hard to get him to get off the idea or action. Published: August 05 ::

My Mother has HCD. She was diagnosed at 50 but we had known for 5-10 years because of some OCD things at the time. She retired at 63 and has had a nice retirement. My sister let her sit in a wheelchair so by 68 she was almost wheelchair bound. At 72 she went to 24/7 sleeping due to lack of her caregiver not visiting her but once a month. At 74 she moved down here to a nursing home who take really good care of her. Mother is up all day now. She is my supervisor as we plant flowers outside and water. She really enjoys it. Recently she is slowing down in speech and movement and I am wanting to learn about how I can help her stave off her slowing movements if not increase her speed. I never act like I know what she says if I don't. What she has to say is very important. We have had a lot of fun this past 2 years while she has been here. My husband is wonderful with her and enjoys sports T.V. with her. My son and his wife sing opera for Momma and her friends and visit when they can. My other son & his wife bless TNC with Momma's great granddaughter "visiting" Momma and her friends about every week. She is so blessed by those who love her and remember what she has been in their lives. I hope and pray to have the opportunity to "love her all the way out". Published: July 31 ::

I am 49, I have been around HD for 35 yrs starting with my brother in law, I watched it kill him, two of his children are dying, and I am raising three of his grandchildren, we adopted, Brianna was only 8 yrs old, she was tested for HD, and did not inherit the gene, but did have CP, and a seizure disorder. She passed away. Her now 14 year old sister does have HD. She is a handful, extremely violent, destructive, my wife and I feel we will have to institutionalize her very soon. The whole household is at risk from her violence, and we need to protect ourselves. Published: July 31 ::

I am 44 my father had Huntington’s disease and passed away 10 years ago. I finally had a test done and was diagnosed with the same I guess I am scared to know after seeing him suffer. I am happy to find out before I went through all of his problems and suffering. He suffered before there was a test. Published: July 31 ::

My son is 36 years old, for the past month or two he has been very angry, hostile and down right evil, he says hurtful things to his family and breaks things around the house. He said he is depressed. I don't know if he is on drugs (he says he isn't), but something is definitely wrong. Published: June 05 ::

I am a 50 year old man. I have an aunt on my mother’s side who died of HD 3 years ago. My mother is 72 years old and has never been tested for HD. Doctors told her that since she doesn't show signs of this disease that she will never get it. My mother also has a brother that has been coping with HD for 4 years now. On top of all this, 3 of my cousins and another aunt have recently discovered that they have this disease. I would like to know if my mother can carry HD without getting it herself. Published: May 13 ::

My mother died at 62 with Huntington's Korea. She had had it since she was 45 or so. His mother also had it but lived until 70. I am 53 and so far have no sign of it. It is possibly one of the saddest ways to die and it's something that lives with me always. She choked on her food, because she was aspirating food with every meal. She was in the hospital at the time after one of her many falls. Published: April 06 ::

My aunt was diagnosed with Huntington disease. She just passed away from this; she was only 42. As a family, it is really hard to deal with this disease. Published: March 25 ::