- Hospice facts
- What is hospice care?
- Why is hospice care important?
- What is the history of hospice?
- What are the main goals of hospice care?
- What are some misconceptions about hospice care?
- What kinds of services does hospice care provide?
- Are hospice services available for children?
- Can hospice care be offered at home?
- What are some medical conditions commonly referred to hospice?
- How is referral to hospice made?
- How does hospice care work?
- Who is part of the hospice team?
- What is respite care?
- Who is eligible for hospice care?
- Who pays for hospice care?
- How can people find and choose hospice care?
- What questions should people ask of hospice agencies?
- Where can a person find more information about hospice care?
What is the history of hospice?
Toward the end of the 19th century, hospices became designated places for the care of terminal patients in Ireland and England. The modern concept of hospice was later developed in England in 1967 by Dr. Cicely Saunders.
St. Christopher's hospice was the first hospice under the direction of Dr. Saunders. The philosophy of end-of-life care and the practice of hospice have since spread to many other countries around the world.
In the United States, hospice was originally run by volunteers who cared for dying patients. In the 1980s, Medicare authorized formal hospice care and Medicare hospice benefits became part of Medicare Part A. State-run insurances or Medicaid also offer hospice benefits, as do most private insurances.
Currently in the United States alone there are several thousands of hospice agencies. This branch of the medical field continues to grow as more people live longer with their chronic conditions. As a result, hospice can become a reasonable option for more patients during the disease progression.
In the early 1990s, hospice became an official medical subspecialty and physicians involved in the care of hospice patients could become board certified in hospice and palliative medicine.
What are the main goals of hospice care?
The end-of-life period is a sensitive part of everyone's life cycle. Psychosocial, financial, interpersonal, medical, and spiritual conflicts are all intertwined.
The main goal of hospice care is to reduce potentially unavoidable physical, emotional, psychosocial, and spiritual suffering encountered by patients during the dying process.
As a result, medical care during this period is very delicate and needs to be individually tailored. End-of-life care requires detailed attention to each person's wishes, beliefs, values, social situation, and personal characteristics.
The complex care of hospice patients may include the following:
- Managing evolving medical issues (infections, medication management, pressure ulcers, hydration, nutrition, physical stages of dying)
- Treating physical symptoms (pain, shortness of breath, anxiety, nausea, vomiting, constipation, confusion, etc.)
- Counseling about the anxiety, uncertainty, grief, and fear associated with end of life and dying
- Rendering support to the patient, their families, and caregivers with the overwhelming physical and psychological stresses of a terminal illness
- Guiding patients and families through the difficult interpersonal and psychosocial issues and helping them with finding closure
- Paying attention to personal, religious, spiritual, and cultural values
- Assisting patients and families making their wishes known and also reaching financial closures (living will, trust, advance directive, funeral arrangements)
- Providing bereavement counseling to the mourning loved ones after the death of the patient