Patient Comments: Hodgkin's Disease - Symptoms

What were the early symptoms of your Hodgkin's disease?

Comment from: Lana, 35-44 Female (Patient) Published: March 03

I was diagnosed with Hodgkin's disease in April 1996. I was pregnant (Age: 30/31) when my symptoms first started. (I had my baby in January 1996.) I was extremely fatigued. I had night sweats that would saturate the sheets. (I slept on beach towels!) My back would itch so bad that I literally drew blood scratching it. (This drove me crazy!) I did not experience weight loss. My blood pressure ran extremely low. I had three swollen lymph nodes in my neck. One was egg-sized. I was finally diagnosed when I "demanded" a biopsy of a lymph node in my neck. After my staging tests, I was diagnosed at stage II. Soon after that I started a treatment of chemotherapy and radiation therapy. I have had no recurrences; however, I must admit I have never felt the same since. I tire very easily, have shortness of breath and have gained a lot of weight. (This was never a problem before.) However, I am so thankful to have had these past 13 years to raise my four children!

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Comment from: Juls, 35-44 Female (Patient) Published: October 13

My Hodgkin's disease started back in 1991. I had been extremely fatigued but was busy with college and wedding plans and thought nothing of it. I also had itchy skin and then developed a pretty bad cough. I noticed I had large swelling at the base of my neck. That is what prompted me to go to the doctor. After a week of it still being there, I went back to the doctor who then sent me to a general surgeon for a biopsy and after the biopsy they did a post-op chest X-ray and could tell that it was most likely Hodgkin's disease, and it was. I was then referred to an oncologist and went through eight months of chemo (ABVD) and six weeks of radiation. I have been cancer-free ever since.

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Comment from: nikki, 25-34 Female (Patient) Published: April 25

The first time around, I had just a couple of lumps, but not too worrying. The second time I had Hodgkin"s disease, not much more but as well as the few lumps, one popped out while I was pregnant with my second child.

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Comment from: stillhere, 25-34 Male (Patient) Published: March 26

I was diagnosed with Hodgkin's disease at the age of 25. I experienced pain in my chest, shortness of breath, and my lips turned purple. I went to the doctor and had a CT scan performed. The scan revealed a tumor pushing against my wind pipe. I went through chemotherapy and radiation therapy and have been cancer-free since 2005.

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Comment from: marlana, Female (Patient) Published: March 03

I woke up one day with a strange lump about the size of a golf ball on the left side of my neck. I went to my family doctor who sent me straight to a throat and neck specialist who did not think the lump was anything to worry about. He put me on antibiotics thinking it was an infection, causing a lymph node to swell. The lump got bigger and he finally ordered a CT scan that showed about nine masses in my neck area. The large lump was then taken out and proved to be stage II Hodgkin's lymphoma.

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Comment from: Becky23, 19-24 Female (Caregiver) Published: March 26

My daughter who has autism was diagnosed with Hodgkin's lymphoma in January of 2015. She was 22 at the time. She had the flu and was not getting any better so we went to the doctor and they did a chest x-ray and that's when our world was turned upside down. She stayed positive the whole time. Nothing seems to get this young lady down. She is fully aware of how serious the situation is. My daughter said I'm going to beat this. I told her no, we are going to beat this as a family. Since her first chemotherapy treatment she has been doing excellent. We still have a long road to go but we are fighters and nothing will take us down.

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Patient Comments

Viewers share their comments

Hodgkin's Disease - Diagnosis Question: What types of tests and exams led to a diagnosis of Hodgkin's disease?
Hodgkin's Lymphoma - Share your Experience Question: Do you, a friend, or relative have Hodgkin's? Please share your experience.
Hodgkin's Disease - Treatment Question: What types of treatment, including medication, have you received for Hodgkin's disease?
Hodgkin's Disease - Diet and Exercise Question: What diet and/or exercise program do you follow to maintain your weight and good health?
Hodgkin's Disease - Follow-Up Care Question: Regular checkups are vital in the treatment of Hodgkin's lymphoma. What kinds of follow-up care do you receive?

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