Patient Comments: Hodgkin's Disease - Symptoms

What were the early symptoms of your Hodgkin's disease?

Comment from: Lana, 35-44 Female (Patient) Published: March 03

I was diagnosed with Hodgkin's disease in April 1996. I was pregnant (Age: 30/31) when my symptoms first started. (I had my baby in January 1996.) I was extremely fatigued. I had night sweats that would saturate the sheets. (I slept on beach towels!) My back would itch so bad that I literally drew blood scratching it. (This drove me crazy!) I did not experience weight loss. My blood pressure ran extremely low. I had three swollen lymph nodes in my neck. One was egg-sized. I was finally diagnosed when I "demanded" a biopsy of a lymph node in my neck. After my staging tests, I was diagnosed at stage II. Soon after that I started a treatment of chemotherapy and radiation therapy. I have had no recurrences; however, I must admit I have never felt the same since. I tire very easily, have shortness of breath and have gained a lot of weight. (This was never a problem before.) However, I am so thankful to have had these past 13 years to raise my four children!

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Comment from: Juls, 35-44 Female (Patient) Published: October 13

My Hodgkin's disease started back in 1991. I had been extremely fatigued but was busy with college and wedding plans and thought nothing of it. I also had itchy skin and then developed a pretty bad cough. I noticed I had large swelling at the base of my neck. That is what prompted me to go to the doctor. After a week of it still being there, I went back to the doctor who then sent me to a general surgeon for a biopsy and after the biopsy they did a post-op chest X-ray and could tell that it was most likely Hodgkin's disease, and it was. I was then referred to an oncologist and went through eight months of chemo (ABVD) and six weeks of radiation. I have been cancer-free ever since.

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Comment from: stillhere, 25-34 Male (Patient) Published: March 26

I was diagnosed with Hodgkin's disease at the age of 25. I experienced pain in my chest, shortness of breath, and my lips turned purple. I went to the doctor and had a CT scan performed. The scan revealed a tumor pushing against my wind pipe. I went through chemotherapy and radiation therapy and have been cancer-free since 2005.

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Comment from: marlana, Female (Patient) Published: March 03

I woke up one day with a strange lump about the size of a golf ball on the left side of my neck. I went to my family doctor who sent me straight to a throat and neck specialist who did not think the lump was anything to worry about. He put me on antibiotics thinking it was an infection, causing a lymph node to swell. The lump got bigger and he finally ordered a CT scan that showed about nine masses in my neck area. The large lump was then taken out and proved to be stage II Hodgkin's lymphoma.

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Comment from: Relief, 13-18 Female (Patient) Published: December 08

When I was 16 years old, I started getting night sweats every day, and they gradually grew more powerful. I also started getting bad fevers, and I was losing a lot of weight, so I went to the doctor. He did blood tests on me, and he never found anything. So, he wanted to do a CT test. After that, he called me saying I had to come back immediately because they found something. So, I went back, and he told me I had cancer, but that he didn't know which one. He referred me to a cancer specialist, and they did many testes and biopsies. They told me I had Hodgkin's lymphoma. I had three weeks of chemo and one month of radiation. Now, I'm cancer-free.

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Comment from: mozza, 45-54 Male (Patient) Published: October 15

I had Hodgkin's 28 years ago and had all the treatments. The pain was in my neck, armpits, glands, and down the front of my chest. After 10 years I was given all clear, but recently I've been having pains in back just below lungs. My water sample and blood count was all fine but I've still got theses pains.

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Patient Comments

Viewers share their comments

Hodgkin's Disease - Diagnosis Question: What types of tests and exams led to a diagnosis of Hodgkin's disease?
Hodgkin's Lymphoma - Share your Experience Question: Do you, a friend, or relative have Hodgkin's? Please share your experience.
Hodgkin's Disease - Treatment Question: What types of treatment, including medication, have you received for Hodgkin's disease?
Hodgkin's Disease - Diet and Exercise Question: What diet and/or exercise program do you follow to maintain your weight and good health?
Hodgkin's Disease - Follow-Up Care Question: Regular checkups are vital in the treatment of Hodgkin's lymphoma. What kinds of follow-up care do you receive?

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