Patient Comments: Hepatitis C - Symptoms

What symptoms did you experience with hepatitis C?

Comment from: Peter T., 65-74 Male Published: September 28

I have been totally paralyzed for 23 years because of my tailbone injury. I can only lie on my back, but since my coccyx hurts so much at night, my husband is turning me for three hours on each side. He also uses electric stimulation on surrounding muscles, and we have every pillow imaginable. We don't even know what kind of specialist to see.

Was this comment helpful?Yes
Comment from: Don P, 55-64 Male (Patient) Published: March 20

I contracted hepatitis C in the late seventies from IV drug use. I was diagnosed in 1995. I have experienced a lot of symptoms including fatigue, headaches, recurring infections (mostly sinus) and worse allergy symptoms. When I first got sick my immune system really went off the rails. I had gum problems, infections under my arms and polyps in my ears. When I got clean in 1987 I was limited to 4 to 6 hours a day. I could not work. I elected not to do the treatment because of several reasons, chief of which was I am into alternative medicine. After many years of research and therapy I work full time and feel good most of the time. My liver enzymes are close to normal and I am still in stage 1 liver disease. This is a potentially fatal illness and I think we should ponder treatment decisions carefully. There are other options out there that your doctors aren"t going to tell you about because they are uneducated in supplements, herbs and other alternative forms of treatment. Check for yourself, it"s your body! Thank goodness I am still alive and clean. Good luck to everyone who suffers from this illness.

Was this comment helpful?Yes
Comment from: karmatrue, 55-64 Male (Patient) Published: January 23

I tested reactive for hepatitis C in 2006. I experienced no symptoms since then. When retested in December of 2013, I was told by the doctor that I was positive for the antibodies, but negative for the virus. No one has definitively explained this to me. I wonder if it is because of the quantitative parameters of the test. All my liver enzymes, etc. are in the normal ranges.

Was this comment helpful?Yes
Comment from: pauline, 45-54 Female (Patient) Published: October 31

I was diagnosed in 2000 while pregnant with my 2nd child. I was probably infected back in the late 70s from IVDU (intravenous drug user). I was told by my family doctor to wait for treatment since I was relatively healthy so I did treatment in 2011 with a study drug along with interferon and ribavirin. It was big mistake. After 6 months of pure hell the virus came back along with chronic pain and fatigue. Genotype 1a is not easy to destroy. My symptoms are fatigue, muscle and joint pain, insomnia, headache, brain fog and diminished cognitive skills. Any kind of stress shuts me down with pain and inability to cope.

Was this comment helpful?Yes
Comment from: Sleepy, 55-64 Male (Patient) Published: October 08

I was diagnosed with Hepatitis C (HCV) over a decade ago. I have terrible sores on my lower legs and developed an itch that consumed my whole body, little bumps from my head to my toes. I was scared and felt like nobody wanted to be near me, (that was just my paranoid thinking) and became very depressed. I have had two years of interferon (non-peg and pegulated) and have been doing well since. I became a diabetic, which happens to some with HCV and now have to deal with that plus I believe that the new COPD I have is caused by my weakened health, but I did smoke.

Was this comment helpful?Yes
Comment from: wrongchoices, 45-54 Male (Patient) Published: July 14

I found out I had hepatitis C after giving blood to the Red Cross in 1995. I got it sometime between 1980 and 1991 from either drug use, tattoos from unclean sources in other countries or unprotected sex). Around 2008 I started to be tired all of the time no matter how little or how much I slept. I have type 1, so I haven't done any treatment to date. I wish my insurance would pay for the new expensive treatment.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Hepatitis C - Diagnosis Question: What kinds of tests did you have to diagnose your hepatitis C?
Hepatitis C - Treatment Question: What methods of treatment, including medication, have you received for your hepatitis C?
Hepatitis C - Treatment Side Effects Experience Question: Describe the side effects associated with treatment for your hepatitis C.
Hepatitis C - Experience Question: Please share your experience with hepatitis C infection.

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.