Patient Comments: Hepatitis C - Treatment and Medications

What methods of treatment, including medication, have you received for hepatitis C?

A Doctor's View on New Hepatitis C Treatments

Read the Comment by Jay W. Marks, MD

There are several clinical drug trials currently underway that suggests soon they may be able to eradicate the hepatitis C virus. Patients currently undergoing treatment for hepatitis C often experience uncomfortable to severe side effects of the hepatitis C treatment drugs, and often suffer a very long treatment period. These new drugs undergoing clinical trials have fewer side effects, have of a shorter treatment duration, and again, can eradicate the hepatitis C virus. So be on the alert for news of approval of these new drugs that just may cure hepatitis C. Read the entire Doctor's View

Comment from: MOMMA T, Female (Patient) Published: January 21

I was diagnosed with hepatitis C genotype 1A with stage 4 liver cirrhosis. My viral load was 500,000 plus, which is not good either. I was told I had hepatitis C. Let me tell you, it devastated me to say the least. What I did find out is that there is treatment out there with a 96 to 100 percent cure rate. I am not talking about a temporary fix to this disease, but a permanent cure. It is very expensive but with my gastroenterologist, primary doctor and pharmacy all pulling for me, I was able to get the medicines and funding for what insurance didn't cover, and I was out a total of USD 5.00 for each medicine I take. This is a huge savings of approximately USD 33,000 per month. So, there is a medicine out there, yes. It is called Harvoni. It does work, and I have very little side-effects so far. I have been taking it for about 2 weeks now and looking forward to my first 4 week bloodwork to see how much it has dropped on my viral load. Don't give up, to any and all of you fighting this horrible disease.

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Comment from: brooke, 55-64 Female (Patient) Published: October 16

I contacted hepatitis C in my early 20s through blood transfusions. At first I was really sick, but didn't know anything about hepatitis C. My stomach was in pain and I couldn't get around. I had a son. The symptoms disappeared then, followed by about 40 years of relative good health. I had fairly good eating habits except for chocolate and sugar (addictions) and caffeine (I didn't start drinking coffee until my 50s). Then I went to China for three years to work and when I returned and got a checkup, which I had not done in many years, my levels were almost 6 million. I took off on the Pacific Crest Trail across Oregon, for the second year with my good friend, and I think that really helped mentally, but the food wasn't the best. However, I have extremely bad acid reflux and choking on my food, rashes on my legs, and puffy places on my ankles. I am exhausted and weak and that depresses me since I am a really active person. My son has bought me the Dr. Schulze detox program and I have been doing this for 2 weeks. I believe that it will kick it. I am 62, I have 7 kids and 11 grandkids. Hang in there you all, there is no power greater than faith and love, so let us stick together. I will soon find out if I can take the new drug that everyone says is so great. I will do whatever I can to regain my physical freedom.

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Comment from: Hep C and Me, 55-64 Female (Patient) Published: December 23

In 1979 I had a blood transfusion. I was diagnosed 15 years later with hepatitis C. It was dormant for many years. My levels rose to over 2 million in 2005. I was treated with ribavirin/Pegasys and it was eradicated. My main symptoms were fatigue and anemia. After 4 to 6 injections, I passed out in public one day and when the hospital tested my levels they had gone from over 2 million to 4! I was too anemic to continue the injections and my doctor discontinued the treatment. Now it is December 2014 and my count is 1 million and rising. I can feel it attacking my body and my gastroenterologist is considering new treatment. Hepatitis C is a scary disease and I hope they find a cure soon. I will be seeing my doctor tomorrow to explore my options. I have the fatigue, and I didn't lose any hair but I only had 4 to 6 treatments before I had to stop.

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Comment from: louise, 55-64 Female (Patient) Published: September 16

I have had hepatitis C since the 70s. I didn't find out until about 10 years ago. I finally went on treatment even though my viral count is about 25000, which is low. I started treatment taking ribavirin and peginterferon. I was doing okay, but had to stop after 5 weeks because my white blood cell count dipped dangerously low. I'm just waiting for treatment other than the two drugs I tried. I wish I could have finished treatment. My liver enzymes are slightly elevated. I try to stay healthy with diet and exercise.

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Patient Comments

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Hepatitis C - Diagnosis Question: What kinds of tests did you have to diagnose hepatitis C?
Hepatitis C - Symptoms Question: What symptoms did you experience with hepatitis C?
Hepatitis C - Treatment Side Effects Experience Question: Describe the side effects associated with your treatment for hepatitis C.
Hepatitis C - Experience Question: Please share your experience with hepatitis C infection.

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