Patient Comments: Hepatitis C - Treatment

What methods of treatment, including medication, have you received for your hepatitis C?

A Doctor's View on New Hepatitis C Treatments

Read the Comment by Jay W. Marks, MD

There are several clinical drug trials currently underway that suggests soon they may be able to eradicate the hepatitis C virus. Patients currently undergoing treatment for hepatitis C often experience uncomfortable to severe side effects of the hepatitis C treatment drugs, and often suffer a very long treatment period. These new drugs undergoing clinical trials have fewer side effects, have of a shorter treatment duration, and again, can eradicate the hepatitis C virus. So be on the alert for news of approval of these new drugs that just may cure hepatitis C. Read the entire Doctor's View

Comment from: brooke, 55-64 Female (Patient) Published: October 16

I contacted hepatitis C in my early 20s through blood transfusions. At first I was really sick, but didn't know anything about hepatitis C. My stomach was in pain and I couldn't get around. I had a son. The symptoms disappeared then, followed by about 40 years of relative good health. I had fairly good eating habits except for chocolate and sugar (addictions) and caffeine (I didn't start drinking coffee until my 50s). Then I went to China for three years to work and when I returned and got a checkup, which I had not done in many years, my levels were almost 6 million. I took off on the Pacific Crest Trail across Oregon, for the second year with my good friend, and I think that really helped mentally, but the food wasn't the best. However, I have extremely bad acid reflux and choking on my food, rashes on my legs, and puffy places on my ankles. I am exhausted and weak and that depresses me since I am a really active person. My son has bought me the Dr. Schulze detox program and I have been doing this for 2 weeks. I believe that it will kick it. I am 62, I have 7 kids and 11 grandkids. Hang in there you all, there is no power greater than faith and love, so let us stick together. I will soon find out if I can take the new drug that everyone says is so great. I will do whatever I can to regain my physical freedom.

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Comment from: Hep C and Me, 55-64 Female (Patient) Published: December 23

In 1979 I had a blood transfusion. I was diagnosed 15 years later with hepatitis C. It was dormant for many years. My levels rose to over 2 million in 2005. I was treated with ribavirin/Pegasys and it was eradicated. My main symptoms were fatigue and anemia. After 4 to 6 injections, I passed out in public one day and when the hospital tested my levels they had gone from over 2 million to 4! I was too anemic to continue the injections and my doctor discontinued the treatment. Now it is December 2014 and my count is 1 million and rising. I can feel it attacking my body and my gastroenterologist is considering new treatment. Hepatitis C is a scary disease and I hope they find a cure soon. I will be seeing my doctor tomorrow to explore my options. I have the fatigue, and I didn't lose any hair but I only had 4 to 6 treatments before I had to stop.

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Comment from: louise, 55-64 Female (Patient) Published: September 16

I have had hepatitis C since the 70s. I didn't find out until about 10 years ago. I finally went on treatment even though my viral count is about 25000, which is low. I started treatment taking ribavirin and peginterferon. I was doing okay, but had to stop after 5 weeks because my white blood cell count dipped dangerously low. I'm just waiting for treatment other than the two drugs I tried. I wish I could have finished treatment. My liver enzymes are slightly elevated. I try to stay healthy with diet and exercise.

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Comment from: JS, 55-64 Female (Patient) Published: July 11

I had the 48 week interferon/ribavirin treatment for hepatitis C, with Eprex injections once a week to help with low red blood cells production. Side effects during treatment were awful. I was very sick the whole time, hair thinning, flu-like, no energy, difficulty breathing, little appetite. However, the treatment was successful. That was in 2010. It is now 2014, and I am still experiencing some long term effects from the treatment, such as cognitive impairment (brain fog), ongoing fatigue, muscle and joint aches, and my thyroid was negatively affected by the treatment, so I am taking thyroid medications for hypothyroidism. I am still glad that I did the treatment, there was no real option, as my liver was at Stage 4, but I am not the same that I was before treatment, even though I was sick at that time. I want to know if others out there are experiencing anything similar.

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Comment from: larryparker318, 45-54 Male (Patient) Published: June 30

I have had hepatitis C for close to 25 years and now the doctors say that I must start fighting back or it will kill me in the next few years. I tried interferon when I first found out I had it but it made me terribly ill and I stopped taking it hoping they would find a cure. I say that if at all possible, take the medicine as early as you can to avoid this low quality of life that I have lived. I suddenly realized, hey wait a minute, I'm too young to die.

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Patient Comments

Viewers share their comments

Hepatitis C - Diagnosis Question: What kinds of tests did you have to diagnose your hepatitis C?
Hepatitis C - Symptoms Question: What symptoms did you experience with hepatitis C?
Hepatitis C - Treatment Side Effects Experience Question: Describe the side effects associated with treatment for your hepatitis C.
Hepatitis C - Experience Question: Please share your experience with hepatitis C infection.

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