Patient Comments: Hashimoto's Thyroiditis - Symptoms

The symptoms of Hashimoto's thyroiditis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Comment from: jspeer, 35-44 Female (Patient) Published: August 20

I first was diagnosed with a goiter a few years ago. My doctor did lab work and all was fine. Eight months ago, I felt like it was hard to swallow food at times and was a little nervous that it had grown bigger so I went to the doctor. She asked me if I was tired all the time, but I have three kids and I work the night shift. I figured that's why I wanted to sleep all the time. I did start having muscle cramps and my periods have always been heavy. My hair was so dry that my hairdresser was wondering what was going on. She ordered lab work and my TSH was 14.7. I'm on 125mcg of Synthroid now.

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Comment from: Connie, 55-64 Female (Patient) Published: July 19

I was diagnosed with Hashimotos after having been prescribed synthroid by a GP that felt lumps on my thyroid. I took it for a couple years before diagnosis of the disease. I feel that if I hadn't taken it for the lumps on the thyroid gland I may not have developed it. Can taking thyroid medication cause it? I am afraid to stop taking the med. but now my joints, it seems ALL of them are cracking and painful and stiff. Is that a side effect? Does anyone know? I read one brief blurp about it causing joint deterioration, but I can't find anything definitive.

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Comment from: *Indy5*, 13-18 Female (Patient) Published: May 20

I'm tired a lot, feel depressed, and cry about how I look at times, even though people say I'm beautiful. On the weekends, I go to sleep at midnight and wake up around 1 p.m. It kills to wake at 5 a.m. when I go to bed 11. My nails are starting to look dull. I also get lots of blood work done and I hate needles! When I have a fever, I really swell all over. My doctor wanted to remove my tonsils if I continued to get strep throat, but it stopped. My uvula swells and it hurts to eat. Two years ago I got an EpiPen, but I who prescribed it to me retired and they took me off the pills.

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Comment from: Nana, 45-54 Female (Patient) Published: May 13

I was recently diagnosed with Hashimoto's after seeing the doctor with extreme pain in my fingers and hands. I would wake up all through the night with pain on the insides of my knees and elbows so severe that I would have to get up and walk around. I was also having muscle cramps very badly. My doctors first thought was rheumatoid arthritis and ordered lab work and X-rays. Labs came back fine for RA but did show high elevation of antibodies for Hashimoto's. I'm now on levothyroxine and am doing much better. I still ache at night and have muscle cramps but nothing nearly like I had been. I'm glad to have a great doctor who listens and doesn't think I'm crazy when I tell him all my odd little aches and pains. I had told my OB/GYN exactly how I was feeling six months prior and he ran normal thyroid tests and said everything was fine, and that my aches and pains were just from lack of rest and exercise. It's a good thing that my GP took me seriously.

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Comment from: meme, 55-64 Female (Patient) Published: May 06

There is more to correcting a thyroid problem than just thyroid supplements/medication. Your caregiver must look at your vitamin D3 levels and also calcium. These all work hand in hand.

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Comment from: Shinanaye, 35-44 Female (Patient) Published: May 01

Very interesting. I am also 43 and was just diagnosed last week. It seems to be the magic number. They did not put me on anything. Instead, they suggested I take Advil as an anti-inflammatory. I am always sleepy – exhausted is more like it – and I feel like I have something in my throat.

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Comment from: 35-44 Female (Patient) Published: August 13

I had extreme fatigue, hair loss, constipation, swelling of knees and ankles, hip pain, and dry, brittle nails. I complained to many different doctors. (Many suspected depression, age, being female.) My gyno suspected something was wrong with my thyroid, so I was sent to endocrinology. Even after tests confirmed Hashimoto's thyroiditis, my primary care physician couldn't believe I had it with normal TSH levels! I went undiagnosed for eight years.

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Hashimoto's Thyroiditis - Diagnosis Question: How was your Hashimoto's thyroiditis diagnosed?
Hashimoto's Thyroiditis - Treatment Question: What types of treatment or medication have you received for Hashimoto's thyroiditis?
Hashimoto's Thyroiditis - Pregnancy Question: If you have Hashimoto's thyroiditis, please share your experience with conceiving and/or pregnancy.

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