Patient Comments: Guillain-Barré syndrome - Symptoms

What symptoms did you experience with Guillain-Barré syndrome syndrome?

Comment from: Miro, 35-44 Male (Patient) Published: December 05

I am 43 and just experienced GBS (Guillain-Barre syndrome) on 1/12/2013. It started in my toes and raced all over my body except the right side of my face. After 6 visits to my general physician telling me to toughen up, it's only a pinched nerve in my back, my wife raced me to hospital emergency room. I was admitted instantly and was looked after. I had all the tests and a lumber puncture and then had an Intragram blood infusion for five days. After 4 days more in hospital I went home. I am having physiotherapy at home at the moment and my strength is getting better day by day. I plan go back to work as soon as I can walk a good distance without getting tired. I still have numbness in my legs, feet, arms, back, mouth and hands.

Was this comment helpful?Yes
Comment from: #Khoasen, 55-64 Male (Patient) Published: November 14

I was diagnosed with GBS (Guillain-Barre syndrome) in April 2012 which was very severe. It started with severe diarrhea, running stomach continuously for three days. I was feeling very weak in my body and was hospitalized for stroke and transferred to a private hospital where a very efficient specialist detected that my nervous system was breaking down due to GBS. He immediately took out a spinal test and took me into the ICU for emergency treatment. My whole body was paralyzed and I could not move. I was hospitalized nearly for two months doing some physiotherapy.

Was this comment helpful?Yes
Comment from: stuart, 65-74 Male (Patient) Published: October 18

I'm certain my GBS (Guillain-Barre syndrome) was triggered by the flu vaccine. I'm rarely ill and was in fine health when I decided to go for my first ever flu vaccine in October 2012. Within a few weeks I was experiencing back pain and tingling down legs and it was getting harder to put one foot in front of the other, I kept falling down as MY legs couldn't seem to hold my weight. I visited the general physician and Accident & Emergency repeatedly but kept getting sent home with the offer of physiotherapy. I eventually went to the hospital in January 2013 and was there till end of March. I lost use of my legs totally and couldn't grip anything with my hands and fingers. I had a lumbar puncture which confirmed what it was. It is a horrible thing to go through, you feel so helpless and frustrated. I had physiotherapy daily and hydrotherapy weekly which helped immensely. I am walking with a stick now but there is still not much feeling in my hands or feet. I keep walking out of my slippers without knowing I've done it. The other half keeps finding them separated in different rooms of house you've got to laugh sometimes.

Was this comment helpful?Yes
Comment from: Patty, 55-64 Female (Caregiver) Published: April 15

My husband had Guillain-Barre syndrome (GBS) 2 times, once in 1995 and then in 1997. He has recovered, with the residual fatigue, tingly legs, and no strength in hands and feet. I have noticed memory issues in the past year or so, possibly related to GBS.

Was this comment helpful?Yes
Comment from: freakie01, 65-74 Female (Patient) Published: July 18

I have had Guillain-Barre syndrome (GBS) since 2011, a very severe case. I am walking with a walker. My face is still frozen from my mouth up. I've lost all of my upper teeth due to nerve damage. This is a devastating disease. When will they research the causes and treatment! I was pretty much on my own, there is no solid course of action as there is with other diseases. More needs to be done!

Was this comment helpful?Yes
Comment from: LisaB, 45-54 Female (Patient) Published: June 02

I had Guillain-Barre syndrome (GBS) when very young, around age 3 or 4, so my memories of it are sort of vague. I"m writing because I"ve had neck pain and headaches for a couple of months, and now a tingly numb hand a few weeks. Tonight my feet and other hand are having pins and needles and I"m wondering about a relapse after all these years; I"m 54! I did have an MRI on brain and neck yesterday, so waiting for those results.

Was this comment helpful?Yes
Comment from: DAVID, 45-54 Male (Patient) Published: January 29

I am a 51 year old male. My body is tired constantly, pain relief does not work but other drugs can take the edge off trembling shaking and tingling. I was hit in the back with the worst pain I have ever experienced. I can't walk or stand for long, it feels like I have been trapped inside my home for the last 15 months. I'll be having more tests for Guillain-Barre syndrome soon.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Guillain-Barre Syndrome - Treatment Question: What kinds of treatment did you or a relative receive for Guillain-Barre syndrome?
Guillain-Barré Syndrome - Symptoms Question: What symptoms did you experience with Guillain-Barré syndrome?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.


Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

Health Solutions From Our Sponsors