Patient Comments: Gastroparesis - Diagnosis

How was your gastroparesis diagnosed?

Comment from: Karen, 45-54 Female (Patient) Published: March 29

In November of 2012 I had two neck surgeries. The first week after that, I was fine. Since then, I have been admitted to the hospital for pancreatitis (lab diagnosis). I had no pain at all – just nausea and vomiting. Within a day of discharge, I started experiencing pain under my rib cage that never stops. I have lost 45 pounds since November and have had frequent nausea with vomiting. My doctor thinks it might be gastroparesis or a problem with one of my bile ducts. I don't have a gallbladder. I've never lost this much weight. So far, my labs are back to normal. I'm just wondering if anyone has had the same symptoms. They would like to do an endoscopic retrograde cholangiopancreatogram (ERCP), but I don't want to have it done. Any suggestion is appreciated.

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Comment from: em, 55-64 Female (Patient) Published: March 25

I have just been diagnosed with gasroparesis after a botched colonoscopy that led to a hemicolectomy. Doctors couldn't understand why I wasn't improving—it started to feel like they thought I was faking symptoms. Nausea, feeling bloated, and abdominal pain just made working impossible, and living with the constant nausea is horrendous. A gastric-emptying study found I was 'significantly abnormal'. As instructed, I've been eating full meals. A dietician recommended I eat small meals six times a day. I'm now on anti-nausea drugs, which aren't helping, and IBS tablets for abdominal pain. I knew there was something wrong, and no doctor admitted it was caused by the major bowel surgery.

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Comment from: Tina, 65-74 Female (Caregiver) Published: May 21

Hi, my name is Tina, Now I have it but my mother does and she is 74 years old. She suffers so bad and she only had it for only 2 months. And she have so many other health problems alone with it. She get so frustrated and I try to keep her spirits up to the best of my ability, and it'd hard seeing her suffer every day. I've been her caregiver for 5 years and it's been stressful, so anyone going through this my prayers. and my mother's go out to you.

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Comment from: 33 years old, 25-34 Female (Patient) Published: March 19

I was diagnosed with Diabetic Gastroparesis just 3 days ago. I had been having stomach pain, always feeling full, vomiting constantly, and recently lost over 30 pounds in just a few weeks for almost a year before my family doctor referred me to my Digestive doctor. Although I was just diagnosed with this disease I have been living with it for over a year now and it is very frustrating and hard to live with. I also feel for others like myself because I know how hard it is to live with this disease.

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Comment from: sick 2mystomach, 55-64 Male (Patient) Published: August 03

Heidi, I am so sorry you are going through this. I am old enough to be your father and have been battling gastroparesis for 12 years. Whatever doctor told you it was emotional problem is a horse's behind. It seems too many docs do that when they're stuck for an answer. The problem is the vagus nerve is severely damaged and therefore your stomach does not produce contractions to aid in digestion and move food along to the duodenum. I suggest you find another gastroenterologist to see if he's able inject Botox into the muscle of the pyloric sphincter.

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Comment from: smilesallday, 35-44 Female (Patient) Published: August 08

Gastroparesis is the worst thing in the world. Oh my, I have been in pain for days and had gone to the hospital and they said, 'chronic abdominal pain'. So I went to my gastroenterologist and he says there is no cure; really! I've changed my diet, and it seems ever since they did the upper endoscopy I'm in worse pain every day and finally I'm getting an appointment for pain management, yes, that's where they sent me! My stomach gets so big as if I was pregnant approximately 9 months and the pains feel like contractions, no one that has not had gastroparesis can imagine the pain I go through on a daily basis.

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Comment from: AmyYo, 35-44 Female (Patient) Published: July 28

I have gastroparesis. I always had stomach issues, but I'm guessing, with diabetes for 34 years and taking poor care of myself, this is what happened.

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Patient Comments

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Gastroparesis - Describe Your Experience Question: Please describe your experience with gastroparesis.
Gastroparesis - Possible Causes Question: What do you believe was the cause of your gastroparesis?
Gastroparesis - Symptoms Question: What symptoms do you experience with your gastroparesis?
Gastroparesis - Treatment Question: What kinds of treatment, including diet and medication, have you tried for gastroparesis?

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