Patient Comments: Gastroparesis - Describe Your Experience

Please describe your experience with gastroparesis.

Comment from: dbk, 35-44 Female (Patient) Published: January 05

I was diagnosed with gastroparesis (GP) almost three years ago. Zelnorm helped the symptoms a bit, and then I was prescribed Reglan, which was effective for a while longer. It is no longer effective, and the new drugs I've tried since then haven't helped at all. I have tried many different diets as well with very little effect. I am constantly bloated and nauseated. I am desperate for relief and searching for a doctor who will perform surgery. Unfortunately, most doctors believe "surgery is not necessary." Obviously, these doctors do not have GP!

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Comment from: Shannon, Female (Patient) Published: January 05

I was diagnosed with gastroparesis (GP) almost two years ago. My symptoms have been extreme at times: severe pain, nausea, vomiting, and diarrhea. My symptoms don't seem to be connected with what or when I eat. Sometimes I will have an episode that will last days at a time. I will often only eat a yogurt or a spoonful of cottage cheese every few hours just to keep my energy up. This is a miserable condition, and I empathize with all who have it.

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Comment from: MSA, 45-54 Female (Patient) Published: February 12

I was diagnosed with gastroparesis 8 years ago after exhibiting all of the symptoms and going through all of the tests that you people have. After years of struggle I was diagnosed with MSA (multiple system atrophy), a degenerative neurological disorder. This is a difficult disorder to diagnose. Please ask your doctors to do more testing and/or refer to a neurologist with expertise in this area.

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Comment from: Carla, 35-44 Female (Patient) Published: July 30

I have gastroparesis, I have tried everything for the last 2 years, I keep getting yeast infections in my intestines and throat, and they tell me I either need a feeding tube or stomach pump.

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Comment from: jmasterj, 35-44 Male (Patient) Published: July 17

I've been suffering from gastroparesis my entire life. At times the symptoms were so bad I've considered suicide. The only things that keeps me going are the fact that the symptoms are sometimes tolerable and even go away entirely for short periods of time. It's a really horrible condition to live with and took many years and many thousands of dollars being misdiagnosed with other conditions by many doctors.

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Comment from: Naz, 55-64 Female (Patient) Published: June 10

After eating, I feel full and 10 to 15 minutes or sometime sooner, I vomit all the food. This has started since 2008. I am on Prilosec 40 mg now.

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Comment from: geoff, 65-74 Male (Patient) Published: August 20

I have suffered bloating, fullness etc, but no vomiting thankfully, for the last four years. Initially I was treated for the bacteria H. pylori and was told it had been removed with treatment but the issues remained and I have now been diagnosed with gastroparesis.

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Comment from: Linda C, 55-64 Female (Patient) Published: August 20

I've had gastroparesis for just over a year. I've lost more than 30 pounds, but the worst part is the intense pain I have that starts just at the breastbone and moves down the left side of my stomach area. I've tried liquid diets, but the pain is still intense. I was told by the GI doc that it was caused by my several stomach surgeries.

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Comment from: Youngandhopeless, 25-34 Female (Patient) Published: August 09

I am a 28 year old female. I have been having major stomach issues for 5-8 years, I have been diagnosed with extreme IBS, severe acid reflux, ulcers and most currently gastroparesis. I also have extreme panic disorder and because of this I have struggled with finding doctors who take me seriously (its all in my head..) and my current GI failed to tell me about the gastroparesis for 2 years after my gastric mobility test. I will not try Reglan due to the serious potential side effects. I do not tolerate erythromycin, that caused such a bad attack i was sent to the ER. Xanax/ativan are the only things that help, i cant stomach the pain meds. I can only tolerate liquids such as baby food, Boost, pur'ed soups and veggies/fruit and yogurt. Oh how I wish I could enjoy a real meal again. I am only 5'0 tall and have always fluctuated between 107-117lbs, I am now 98lbs and currently losing more every week. The last three months have been bad. I think of myself as a strong hard worker and I have missed so many days of work this year that I now have to take no pay when I get sick, which is more than once a week. At least I still have insurance. I am about to go see a gastric motility specialist so maybe things can finally get on the right track. I miss bring a young woman with friends, a social life. Leaving the house to do simple errands these days is difficult. I have no idea what triggers these attacks, that I relate to a "stomach seizure" I get hot and sweaty and vomit until there's nothing left but that doesn't stop the waves of nausea/cramping, I can't even talk during these things they are so painful-I can only take Xanax and make myself pass out and then I'm so weak for the next week. I do notice when I don't get enough sleep (every night) it's a lot worse the next day. I feel exactly like I'm really hungover minus the fun times and alcohol just about everyday. Seeing that I'm not the only one, I'm not making it up, is reassuring but I hate to hear so many others feel this awful.

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Patient Comments

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Gastroparesis - Diagnosis Question: How was your gastroparesis diagnosed?
Gastroparesis - Possible Causes Question: What do you believe was the cause of your gastroparesis?
Gastroparesis - Symptoms Question: What symptoms do you experience with your gastroparesis?
Gastroparesis - Treatment Question: What kinds of treatment, including diet and medication, have you tried for gastroparesis?

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