Patient Comments: Gastroparesis - Describe Your Experience

Please describe your experience with gastroparesis.

Comment from: Swtjess, 25-34 Female (Patient) Published: May 09

I have been sick since I was a little girl. I have always had stomach problems always have been sick. I went to so many doctors first they said it is because of my heart issues, then they said it was because of my thyroid (hyperthyroidism). Then I went to a gastroenterologist and he said I have gastroparesis. I wanted a second doctor to make sure. After going to the second doctor, he confirmed I have gastroparesis. I have been diagnosed for 3 months, still trying new things. I have lost 30 pound, want to get better soon! Need to figure this out.

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Comment from: SVH105, 65-74 Female (Patient) Published: April 11

I have just been diagnosed with gastroparesis and I"m a type 2 diabetic. According to the test results it took 90 minutes to empty 22% of the egg into the small intestine leaving 78% still in my stomach. That seems to me that eating six small meals a day I will never empty my stomach. As it is right now I cannot eat breakfast until about 10:00 AM, (usually one scrambled egg) and I"m not ready to eat again until 7:00 PM and that would be a small bowl of soup. I have a call into my endocrinologist I"m just waiting to hear back from him.

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Comment from: Suzi, 45-54 Female (Patient) Published: February 20

I've had and endoscopy and stomach emptying test along with sonograms, biliary scan and blood work. Felt like I was having a heart attack! I have a gall bladder stone and I was just diagnosed with gastroparesis. I am on 40 mg of Prilosec and hyoscyamine. I've had hiatal hernia and GERD for 30 years. I just lost 30 lbs in the past two months. I eat very small meals and no more junk food. A friend just turned me on to some natural herbal things. I've started two days ago and it is helping more than the medical tablets. Fifteen minutes before any meal I open a capsule of slippery elm into 4 oz of filtered or spring water and let it set for few minutes. I then chew a tablet called DGL (licorice root) and drink the water with slippery elm. I get it from any good health food store. I have to tell you it is really helping! My friend swears by it and said after three weeks she's off her stomach medications! I"m going to continue!

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Comment from: 35-44 Female (Patient) Published: January 08

I was diagnosed with gastroparesis in June 2013. I was nauseated and vomiting. Most of all it is the stomach pain. I'm on tramadol for the pain but it doesn't really work. I've been on Reglan, erythromycin, domperidone, promethazine, Zofran and nothing has worked. I can go 3-4 days without solid foods. I go from having diarrhea to being constipated. I also have severe sleep apnea and insomnia. When I first got sick I weighed 242, I believe. Now I am less than 170 pounds, I've lost almost 80 or more pounds. It feels as though I am wasting away. I took the smart pill test after which the doctor prescribed Neurontin which does work. All it does is make me groggy.

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Comment from: anneketag, 45-54 Female (Patient) Published: December 17

I'm a type 1 insulin dependent diabetic. On 3/3/2014 I will have been so for 48 years. My kidneys, liver and periphery are fine. Have had laser surgery on my right eye but can still see well enough to drive. I was chatting with a friend, who's also Type 1 and described my symptoms. She had been diagnosed a while before and told me the name of what I had. I went to my doctor with this and he agreed and had me start on acidophilus once a day. And it helped, for a time. First it was severe gas; I would wake up, sit up, open mouth and had to have a long, pronounced burp. The gas went the other way too. Following year, I had severe diarrhea. Now I am losing 10 pounds a month. I don't heal as well as I once did, even months ago. So the surgical option is out. The constipation has set in. The constant nausea and abdominal pain drains me. So I sleep off and on all day. My A1Cs have always been good, 6.7 last time. It's probably better now because I can't eat and the weight loss has caused severe insulin shock that I've trained my husband to treat. I don't want any more medicines. I can't have surgery. And I am sick and tired of being sick and tired. I started this weight loss process real padded. So I'll be around for a while.

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Comment from: Debbie, 45-54 Female (Patient) Published: December 16

I was diagnosed with gastroparesis after 3 visits to the emergency room and all 3 leading to in-patient stays. Finally one kind gastrointestinal physician came to my room for a consult. After listening to me he ordered a gastric emptying study and all of the problems I had been having were finally diagnosed. A cardiologist was even consulted and a heart catheterization was performed with negative findings. Domperidone has been such a life saver. If I avoid caffeine, alcohol, greasy foods and fried foods I am much better. I have the occasional nausea but nothing like before. The upper gastrointestinal pain I was having subsided with 150mg of Zantac twice daily in coordination with the domperidone. I know there are risks with the domperidone but the amount of relief I have experienced makes the risks seem not so bad.

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Gastroparesis - Diagnosis Question: How was your gastroparesis diagnosed?
Gastroparesis - Possible Causes Question: What do you believe was the cause of your gastroparesis?
Gastroparesis - Symptoms Question: What symptoms do you experience with your gastroparesis?
Gastroparesis - Treatment Question: What kinds of treatment, including diet and medication, have you tried for gastroparesis?

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