Patient Comments: Gastroparesis - Describe Your Experience

Please describe your experience with gastroparesis.

Comment from: thisbudcando, 35-44 Female (Patient) Published: July 25

I have gastroparesis believed to be gotten from a car accident in 2009. I went until February 2014, they had been telling me for years there is nothing to do but pills. But thanks to a doctor I now have an experimental pace maker called the Enterra pacemaker. It is on the abdomen. At first the thing seemed to cause loads of pain and never seemed to keep me from vomiting on a daily basis. Now after many setting changes on the machine, we seem to have found a setting and it's been 30 plus days without vomiting. There is hope out there! I lost over 200 pounds and my heart and liver were in failure due to lack of nutrients. I am eating and holding food down and my weight is stable for the first time in a year!

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Comment from: C from kansas, 45-54 Female (Patient) Published: July 11

I was diagnosed with 10 years ago with pernicious anemia (B-12 Deficiency), and irritable bowel syndrome (IBS), then 8 years ago with primary biliary cirrhosis (PBC) and a fatty liver. A little over a 1 year ago I was diagnosed with gastroparesis, fibromyalgia, and recently with osteopenia. I am on many vitamins and medicines ursodiol, levothyroxine, Nexium, domperidone, Cymbalta, calcitonin, tramadol, sucralfate, and promethazine for nausea. I am at a stage now where I am always feeling fatigue, soreness, headaches, itching, and nausea. I go through spells from constipation to severe diarrhea and vomiting several times a day to feeling this way for weeks. I keep telling myself it could be worse. I'm just sick of being sick all the time never knowing when things will flare up.

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Comment from: LG, 65-74 Female (Patient) Published: July 08

I have just been diagnosed with gastroparesis. In the past I have had peptic ulcers. I also suffer from GERD and have a hiatal hernia. I have always had a touchy stomach. I did not eat a lot of vegetables when I was younger, ate white bread, and not much fruit. When I got older I was told I needed to eat more fiber so I started eating more whole grains, more vegetables and fruit, more fibrous food. Now I am back to eating little or no fiber, white bread, and am constantly burping or belching and letting out gas. That could be my medicine. I am calling my doctor's office to see if he wants to do a follow up with me now that my tests are done.

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Comment from: Bonnie, 55-64 Female (Patient) Published: May 30

I have noticed my stomach growing steadily over the past two years. It didn"t interfere with my ability to eat until 6 or 8 months ago. I can eat maybe 1/3 or 1/4 of what I used to. And I"m stuffed. I can"t belch. I am constantly taking Pepto-Bismol or Gas-X. My stomach is so large, it"s pushing up on my diaphragm, so I have a lot of trouble breathing. I can"t stand to do housework or dishes for more than ten minutes due to muscles pulling and burning in my middle back, behind my stomach. I can"t breathe lying down. I have to sleep in a recliner. Recently I tried Reglan; made me sicker. I"m over this gastroparesis; tired of having to buy maternity clothes, as nothing else fits!

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Comment from: rosie56, 55-64 (Patient) Published: May 30

I am 57, type 2 diabetic. I have had gastroparesis for years but it"s really getting me down. For a few days I'm really constipated and bloated and vomit when I eat anything, then for the next week or two I have severe stomach cramps and uncontrollable diarrhea. I also bleed a lot from the back end. I"ve had numerous tests and medication but nothing works. I"m scared to go out and have to wear a nappy. On top of this I have severe narcolepsy and cataplexy but that"s another story. At the moment my stomach is so bad I daren"t eat and am losing loads of weight. My heart goes out to everyone with this horrible condition.

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Gastroparesis - Diagnosis Question: How was your gastroparesis diagnosed?
Gastroparesis - Possible Causes Question: What do you believe was the cause of your gastroparesis?
Gastroparesis - Symptoms Question: What symptoms do you experience with your gastroparesis?
Gastroparesis - Treatment Question: What kinds of treatment, including diet and medication, have you tried for gastroparesis?

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