Patient Comments: Gastroparesis - Describe Your Experience

Please describe your experience with gastroparesis.

Comment from: C from kansas, 45-54 Female (Patient) Published: July 11

I was diagnosed with 10 years ago with pernicious anemia (B-12 Deficiency), and irritable bowel syndrome (IBS), then 8 years ago with primary biliary cirrhosis (PBC) and a fatty liver. A little over a 1 year ago I was diagnosed with gastroparesis, fibromyalgia, and recently with osteopenia. I am on many vitamins and medicines ursodiol, levothyroxine, Nexium, domperidone, Cymbalta, calcitonin, tramadol, sucralfate, and promethazine for nausea. I am at a stage now where I am always feeling fatigue, soreness, headaches, itching, and nausea. I go through spells from constipation to severe diarrhea and vomiting several times a day to feeling this way for weeks. I keep telling myself it could be worse. I'm just sick of being sick all the time never knowing when things will flare up.

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Comment from: LG, 65-74 Female (Patient) Published: July 08

I have just been diagnosed with gastroparesis. In the past I have had peptic ulcers. I also suffer from GERD and have a hiatal hernia. I have always had a touchy stomach. I did not eat a lot of vegetables when I was younger, ate white bread, and not much fruit. When I got older I was told I needed to eat more fiber so I started eating more whole grains, more vegetables and fruit, more fibrous food. Now I am back to eating little or no fiber, white bread, and am constantly burping or belching and letting out gas. That could be my medicine. I am calling my doctor's office to see if he wants to do a follow up with me now that my tests are done.

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Comment from: Bonnie, 55-64 Female (Patient) Published: May 30

I have noticed my stomach growing steadily over the past two years. It didn"t interfere with my ability to eat until 6 or 8 months ago. I can eat maybe 1/3 or 1/4 of what I used to. And I"m stuffed. I can"t belch. I am constantly taking Pepto-Bismol or Gas-X. My stomach is so large, it"s pushing up on my diaphragm, so I have a lot of trouble breathing. I can"t stand to do housework or dishes for more than ten minutes due to muscles pulling and burning in my middle back, behind my stomach. I can"t breathe lying down. I have to sleep in a recliner. Recently I tried Reglan; made me sicker. I"m over this gastroparesis; tired of having to buy maternity clothes, as nothing else fits!

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Comment from: rosie56, 55-64 (Patient) Published: May 30

I am 57, type 2 diabetic. I have had gastroparesis for years but it"s really getting me down. For a few days I'm really constipated and bloated and vomit when I eat anything, then for the next week or two I have severe stomach cramps and uncontrollable diarrhea. I also bleed a lot from the back end. I"ve had numerous tests and medication but nothing works. I"m scared to go out and have to wear a nappy. On top of this I have severe narcolepsy and cataplexy but that"s another story. At the moment my stomach is so bad I daren"t eat and am losing loads of weight. My heart goes out to everyone with this horrible condition.

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Comment from: Swtjess, 25-34 Female (Patient) Published: May 09

I have been sick since I was a little girl. I have always had stomach problems always have been sick. I went to so many doctors first they said it is because of my heart issues, then they said it was because of my thyroid (hyperthyroidism). Then I went to a gastroenterologist and he said I have gastroparesis. I wanted a second doctor to make sure. After going to the second doctor, he confirmed I have gastroparesis. I have been diagnosed for 3 months, still trying new things. I have lost 30 pound, want to get better soon! Need to figure this out.

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Comment from: SVH105, 65-74 Female (Patient) Published: April 11

I have just been diagnosed with gastroparesis and I"m a type 2 diabetic. According to the test results it took 90 minutes to empty 22% of the egg into the small intestine leaving 78% still in my stomach. That seems to me that eating six small meals a day I will never empty my stomach. As it is right now I cannot eat breakfast until about 10:00 AM, (usually one scrambled egg) and I"m not ready to eat again until 7:00 PM and that would be a small bowl of soup. I have a call into my endocrinologist I"m just waiting to hear back from him.

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Gastroparesis - Diagnosis Question: How was your gastroparesis diagnosed?
Gastroparesis - Possible Causes Question: What do you believe was the cause of your gastroparesis?
Gastroparesis - Symptoms Question: What symptoms do you experience with your gastroparesis?
Gastroparesis - Treatment Question: What kinds of treatment, including diet and medication, have you tried for gastroparesis?

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