My family suffer from fragile x but it says that a father cannot pass on fragile x to his sons which is completely untrue, all of the females in the family are not badly affected except one, but she only has a slightly big head. It is not that big! My grandfather and one of his sisters received fragile x while his brother and other sister remained normal and had normal families with no physical or mental traits associated with fragile x. I do not suffer from any behavioral problems and in that regard I'm unaffected, but I have development delay, elongated face and a broad forehead. I hope this will be of benefit to you, in finding the probability of people affected and in terms of the cure. I hope that there will be a cure for the physical traits in the nearby future so that it will not affect future generations. Published: June 04 ::

I have a child that fits all the criteria for fragile x, yet we cannot get our pediatrician to order the test. She feels that because he does not fit the physical characteristics that he does not have the condition. We have been through extensive testing and our son is learning disabled, has speech problems, borderline I.Q. and has ADHD and mood instability and certain autistic characteristics. We intend to keep pushing because along with our son there are other boys in the family tree possessing these same characteristics. To any parents out there experiencing what we are going through: keep pushing and educate the physicians. You are on the same web page as I because it fits. It isn't the "diagnosis du jour" as is bipolar or simple ADHD. You know your child best. Published: August 05 ::

I have a 10-year-old son that has fragile x syndrome. My son is very loving. He understands signing, and he understands English and Spanish. He doesn’t speak. He doesn’t know how to read or write. He is the most loving kid I have ever worked or been with. I wish I knew how to help him more. Published: November 10 ::

My son is 25 years old and has fragile x. He has been having a difficult time for the past year with his dad passing away. His behavior changes all the time and the doctor keeps changing his medicine but I dont know if that is the problem. Published: October 07 ::