Patient Comments: Fish Odor Syndrome - Treatment

Discuss your diagnosis of and treatment for fish odor syndrome.

Comment from: welive, 45-54 Female (Patient) Published: January 13

I was diagnosed with TMAU (trimethylaminuria) or fish odor syndrome about 15 years ago. Giving it a name made it a little easier. Medicine of any kind for depression or any amines made my condition 10 times worse. I have accepted my condition and I am strong, I am not afraid.

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Comment from: balley, 35-44 Female (Patient) Published: December 23

After 5 minutes after I take shower I smell like fish.

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Fish Odor Syndrome - Signs and Symptoms Question: What were the signs and symptoms associated with fish odor syndrome in you or someone you know?
Fish Odor Syndrome - Causes Question: If known, what was the cause of your fish odor syndrome?

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