Patient Comments: Fibromyalgia - Treatments

What treatment has been effective for your fibromyalgia?

Comment from: Hopeful, 45-54 Female (Patient) Published: March 29

I've had fibromyalgia for about 13 years. It took four doctors and about five years of testing to diagnose. This is a “real” syndrome and I do believe that in my lifetime there will be a cure. Every day is a struggle with pain and fatigue. What I choose to focus on is what I can do. I take 75 mg of tramadol in the morning and I work out 30 minutes a day on an elliptical. This has made all the difference in the world. You must keep moving. Exercise is the key in dealing with fibromyalgia. Yes, there are days I have to drag myself to do it, but I know it is going to help with the pain and fatigue. Hang in there and stay positive.

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Comment from: Farrah, 25-34 Female (Patient) Published: March 13

I've been suffering with fibromyalgia for about two years now. In the mornings I'm in the most pain but my pain last all day. I have taken Lyrica, Cymbalta and Gabapentin and nothing seems to help that much. I was on morphine an percocet and those helped for a little relief thoughout the day. i take hot showers which seem to help a little and i also have a tens machine to reduce pain. i suffer with fibromyalgia everyday im in pain all the time but i try to relax and not stress.

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Comment from: Mary, 45-54 Female (Patient) Published: January 31

A vegan diet, regular exercise, Tai Chi, meditation, resting as soon as I feel tired if only for a few minutes, and no caffeine.

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Comment from: FMS sufferer, 35-44 Female (Patient) Published: January 14

I am 41 now and was diagnosed with fibromyalgia when I was 24 years old. At 37 I was diagnosed with celiac disease and avoid all gluten. I was also diagnosed with chronic lyme disease in 2011. I find I have to avoid most vegetables, fruit, nuts, corn, food preservatives, and medicine preservatives like sodium laural sulpate and metabysulpite. I cook everything at home and only use salt and butter as I am also sensitive to oils. Also, I had to find personal care products that contain no sodium laural suphate. Perfumes and dyes also bother me and I have to stick to "free laundry detergents" and no fabric softener. This in itself has proven to be a nightmare since most hair products without these are sold online and I did a lot of testing before finding the right ones. Also toothpaste contains SLS and mint which I am also allergic to. I used baking soda for 2 years before finding calendula toothpaste that I can use. If I don't avoid these things I get bad cystic acne, cold sores, mouth sores and increased pain. The only pain medication I can take is oxycodone since I am also allergic to Tylenol and can't take NSAIDS due to the celiac disease. I am in the process of adding some foods back into my diet one at a time and gauging my reaction since I was on antibiotics for 2 years due to the lyme disease.

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Comment from: Ester J, 45-54 Female (Patient) Published: December 03

I was also diagnosed with fybromyalgia. A friend of mine is a Vet and he said that fybromyalgia is a symptom and not an illness and that I must ask my specialist to search for the cause of the fybromyalgia. More blood tests were done and it was discovered that I was infected with the Riakketzia bacteria virus last year when I had a tick bite fever. Please ask your doctor/specialist to keep on looking for the cause of fybromyalgia as this is not an illness as they led us to believe. This is in fact caused by an illness and unless they treat the illness, you will keep on suffering from fybromyalgia and waste your money, as no one has a cure for this "illness". Never stop looking for the cause of your fybromyalgia.

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Comment from: 55-64 Female (Patient) Published: December 03

I've had 10 years of trying to figure this out and am managing quite well without drugs. High doses of vitamin D3 and magnesium citrate along with other antioxidant supplements and I no longer have pain issues.

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Comment from: JulieHass, 45-54 Female (Patient) Published: September 12

I take Lyrica, and Ultram. I also take Efexor and Wellbutrin for my depression. Cymbalta caused too many side effects, but it did help the pain, a little. I also take a small amount of Klonopin before bedtime to help me sleep. Advil or Yylenol helps in the short term. I have been having frequent flair ups where all the tender points just ache and ache.

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Fibromyalgia - Symptoms Question: What were your initial fibromyalgia symptoms?
Fibromyalgia - Treatment Question: Please describe treatments that have been effective for your fibromyalgia.
Fibromyalgia - Lifestyle Changes Question: What lifestyle changes (diet, exercise, etc.) have you found helpful in relieving fibromyalgia pain?

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