Patient Comments: Fibromyalgia - Treatment

Please describe treatments that have been effective for your fibromyalgia.

Comment from: lisa, 45-54 Female (Patient) Published: May 30

When I was diagnosed with fibromyalgia my doctor put me on gabapentin and it has worked well and it has also relieved the pain from sciatica. At night I take a low dose of amitriptyline to help relax me so I can sleep, but nothing helps the osteoarthritis in my knees which has put me in wheelchair.

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Comment from: DAVID, 55-64 Male (Caregiver) Published: April 11

In approximately 1997 I was diagnosed with fibromyalgia syndrome (FMS) by a rheumatologist mainly as a "diagnosis of exclusion" along with the bilateral sensitive points. The fatigue and pain sometimes sent me "up to the ceiling", and even though I needed to go somewhere and could see the car through the window, it might as well have been 25 miles away! The support group I attended had about 35 sufferers and all were on different drug regimes. I went to see a naturopath and he did various tests that discovered various minor causes but finally he found that my Krebs cycle was deficient in one particular substance and there was a supplement of that available alpha-Ketoglutaric acid. By this and an exercise program (supported by calcium, magnesium, MSM, food grade glycerin and other supplements) tailored by a physical trainer who was educated regarding FMS, my symptoms started to subside. After exiting from the chemical laden USA (the CDC recognizes both multiple chemical sensitivity (MCS) and FMS as bone fide diagnoses, they are often found together in patients who have FMS), I have been free of symptoms 97% percent of the time! This of course does not mean all FMS sufferers will have a deficiency in the Krebs cycle; but if you can convince your primary doctor to do the test, it could be worth it. Best to all of you.

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Comment from: Juliz, 55-64 Female (Patient) Published: February 26

Fentanyl and Distalgesic are the only pain relief which work for me for fibromyalgia, I have tried gabapentin, amitriptyline and other similar drugs, but I get unacceptably high levels of side effects, notably headaches and/or vomiting, even at very low dose. They have enabled me to get out of bed most mornings and even function as a human being part of the time, instead of lying in bed with tears of pain and exhaustion rolling down my face.

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Comment from: rozak, 55-64 Female (Patient) Published: February 11

I have fibromyalgia since the age of 28 and I am now 59. I have been on morphine for years. Most recently I weaned off my medication and tried Topaz and to my surprise I am in no pain at all. I think it calmed all the nerve impulses in my brain. I have tried so many drugs in my lifetime. I tried this one because it is supposed to be for hypersensitivity to pain. Well it worked on my headache and pain level.

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Comment from: lacana, 55-64 Female (Patient) Published: January 09

For my fibromyalgia Savella has worked like a charm. Most of the time I am without pain.

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Comment from: bbuny1, 19-24 Female (Caregiver) Published: November 21

I just want to let people know that there is NO SUCH THING as Fibromyalgia! This information came from one of the many doctors that my son saw a couple of years ago that tried to lump him into this category. After a doctor told him that is what was wrong with him. We said ok finally an answer. Boy were we wrong. That was no an answer, because the doctors couldn't find what was wrong with him and because they couldn't see what/where his pain was, they lumped him into that category. Finally an honest doctor told us that is not a REAL diagnosis and there is NO such thing. You get lumped into the "Fibromyalgia category" when either the doctor gives or you do!! He suggested that he have a muscle biopsy. They did it and sent it off to Duke University and they found that my son had a rare form of Muscular Dystrophy! Don't fail yourself; make the doctors do their jobs! There is no unexplained reason why you hurt. Find your reason!

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Comment from: Bilie, 35-44 Female (Patient) Published: August 28

I am 40 years old. I was diagnosed with fibromyalgia about 4 years ago. Before diagnosis my life was painful and I was driving everyone away because of the pain and depression that was debilitating me. I am currently taking Celexa for pain management and the management of depression. I don't know why this drug works for me but I have tried living without it since starting it and when I'm not taking it I am not functional. My pain and moods are unbearable. It has been helpful. I also take trazodone for restless leg when needed. Eating healthy, getting sleep, and knowing my limits have also helped me greatly. I was in agony physically and emotionally before being diagnosed and accepting that I had fibromyalgia. Now most days are bearable and I look forward to what each day brings. Of course I am always aware of my body and it's needs and am no longer in denial but dealing with being a fibromyalgia sufferer.

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Fibromyalgia - Symptoms Question: What were your initial fibromyalgia symptoms?
Fibromyalgia - Lifestyle Changes Question: What lifestyle changes (diet, exercise, etc.) have you found helpful in relieving fibromyalgia pain?

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