Patient Comments: Fibromyalgia - Symptoms

What were your initial fibromyalgia symptoms?

Comment from: RoyalGeek, 25-34 Female (Patient) Published: April 11

After going from doctor to doctor, finally a neurologist suggested that I have fibromyalgia. My numerous blood tests were all good. CAT of my head was fine, MRI of my jaw and neck were fine, and x-ray of my chest was fine. I have chronic headaches and migraines, pain in my knees and elbows, collarbones and neck, hips, thighs, pelvis, jaw, even my underarms and sides of my breasts. I am always so tired and gained a bunch of weight. But according to my family doctor and others, I am fine. It is frustrating. I also have bad anxiety and am afraid I have something bad that the doctors might have missed. I'm tired of being in pain and refuse to take any pain medicines since my family has a history of addiction.

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Comment from: Kmac, 35-44 Female (Patient) Published: October 06

I thought I had a reoccurring ear infection, with severe pain in my ear and on the left side of my face. That lasted for a couple of years on and off and while pregnant, I thought that I had been introduced to pregnancy arthritis. After the birth of my baby it did not go away, it seems that it only get worse. And so my initial thought was that I had rheumatoid arthritis, or some type of arthritis. The pain in all of my joints and the skin on the back of my neck, my ear, and in the side of my face was pretty substantial. We saw many doctors, and had many emergency room visits for ear infections, without finding anything. Finally one night in the emergency room the doctor looked at me and said this is not an ear infection, and that I have a small case of fibromyalgia and I had never heard of it before then.

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Comment from: willie r., 55-64 Male (Patient) Published: May 27

My initial fibromyalgia symptoms were pains in most joints and back.

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Comment from: shirmoy, 75 or over Female (Patient) Published: February 17

I have had trouble with fibromyalgia for a long time. I noticed a pain in my shoulders and upper back after I had my second child. I was 19 years old then. I have been wondering lately if it could have been from me having measles real bad when I was 13 0r 14 years old. The weather is my biggest problem and then stress. I have flu like pain. Sometimes it is bad. I get sore over most of my body and that makes hard to get around.

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Comment from: HiddenValleyGirl, 55-64 Female (Patient) Published: December 16

The event that triggered my fibromyalgia was a near-accident while riding the bus. I was in the very back in the middle of the seat, where there is no seat in front of you. When the driver slammed on the brakes, to avoid a car that suddenly pulled into traffic, I had to brace myself to keep from flying down the center aisle. I ended up with whiplash. Then I began having severe headaches when I tried to focus on anything for any length of time; all I could do was lay down. I was also having severe pain and insomnia. My doctor at the time tried to say it was just due to the fact that I was getting older. Mind you, I was in my late 30s at the time! I also have severe osteoarthritis in my back and neck, and spinal stenosis, so my pain is nearly constant and probably magnified by the fibromyalgia. I was finally declared disabled about 9 years later, on the basis of the spinal stenosis diagnosis. I take Flexeril for muscle pain, Elavil for nerve pain and tramadol, a non-narcotic pain medicine. I am still in pain, but it helps to keep my mind busy; I can usually block it out to some degree. I have also learned that one can sometimes release some of the pain through acupressure on the tender points. Try melatonin for insomnia; I take 100 mg when I can't sleep and usually fall asleep in about 20 minutes. Your body uses melatonin to make serotonin, something you may be lacking as a fibromyalgia patient, and which helps with sleep. I also have intermittent tachycardia, due to my pain level which has recently increased. I take Diltiazem to slow my heart down some. My insurance recently denied a new MRI to determine the reason for the pain increase. However, I am grateful for the friends I live with, and for the fact that fibromyalgia is now a recognized disease. When this all started, I had to self-diagnose and only received a positive diagnosis shortly before my disability was approved. It is not easy having an invisible disease!

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Fibromyalgia - Treatment Question: Please describe treatments that have been effective for your fibromyalgia.
Fibromyalgia - Diet and Lifestyle Changes Question: What lifestyle changes (diet, exercise, etc.) have you found helpful in relieving fibromyalgia pain?

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