Patient Comments: Erythema Nodosum - Experience

Please describe your experience with erythema nodosum.

Comment from: steve, 35-44 Male (Patient) Published: July 02

When I was diagnosed with erythema nodosum it took a trip to the emergency room cause the pain was so bad I couldn't walk. After the initial diagnosis he said this condition can be caused by low potassium levels so he wrote me up a prescription for Potassium Iodide drops. Instructions were 5 drops in one cup any kind of juice or water twice a day. two days later all that was left were the bruises which were gone after a couple weeks. I got it again a couple years later went straight to the doctor and asked for the potassium iodide and this time the symptoms started to go away over night it was amazing Hope this helps.

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Comment from: ttcuts, 19-24 Female (Patient) Published: April 19

I had strep throat and a week later I had to get a TB skin test done. The next morning after I got out of the shower, I noticed what I thought were bug bites, so I cleaned everything. The next day, I noticed they were bigger and there was more, but still didn't do anything about it. A week later, I finally went into emergency. They told me it was erythema nodosum and said to take Advil. That didn't help and the swelling got a lot worse. I went to a different hospital and they put me on prednisone, which helped for a week. It's now been five weeks and I'm bruised from my knees down to my feet. I can't wear socks or running shoes and it still hurts to walk.

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Comment from: Jennilen, 25-34 Female (Patient) Published: January 05

I continue to get erythema nodosum without a cause. For me, it is on my shins, upper outside legs, and buttocks. I am 27 years old and fairly healthy. I am so tired of dealing with this. It is so painful and hurts with the slightest pressure. Sleeping is a challenge. I don't think doctors realize how painful this is. My doctor doesn't seem that concerned about it. It is a skin disorder ... duh, I knew that already. I just want it to go away.

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Comment from: Dyanaz24, 35-44 Female Published: January 05

I was diagnosed with EN about a year ago. It only affects my buttocks. It started with my upper thighs with about nine spots the size of fists, and now it stays only on my rear. My left side has a spot about the size of my fist, and the right side has several spots like marbles. I can't sleep on that side because of them. They usually go down with Kenalog injections, but since I am having surgery on Jan. 20, I can't have any. They gave me Vicodin to deal with the pain.

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Comment from: Rosie, 25-34 Female (Patient) Published: January 05

I have been diagnosed with erythema nodosum by my doctor. I started with achy legs about three weeks ago and noticed a painful, red lump on my shin. Then I noticed another one on the other leg. Now I have around nine on my legs. I'm finding that I wake up with the pain, and my legs and back are very stiff in the mornings.

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Comment from: Shweta, 25-34 Female (Patient) Published: January 05

I am 28 and have been suffering from EN for the last two months now. My ankles are swollen, and every morning it is terrible to see my face swollen up, especially my eyes. The swelling remains the whole day. To be honest, I don't remember the last time I saw my face normal.

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Comment from: 35-44 Female (Patient) Published: January 05

I've got it again! It's been 15 years since I had erythema nodosum (EN); last time it was a couple of lumps by my knee. The diagnosis was confirmed by biopsy and the knots went away quickly after a course of potassium iodide. (My mom used to get the same knots on her leg when she was pregnant or under severe stress. One year she was off work for five months because of EN. She says it's one of the immune system disorders.) This time I've got several bumps near my ankle and there's a bit of swelling. Guess I'd better head out to the doctor before it gets worse.

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Comment from: kk, 19-24 Female (Patient) Published: December 12

I am 19 years old, and I have just been diagnosed with Erythema Nodosum. I have huge red knots on both my legs that are very, very painful. At first, my doctor didn't know what it was so he sent me to a dermatologist. He has only put me on antibiotics and a cream that's supposed to help with the tenderness, but it doesn't really help. I don't know what else to do about it. It's very painful to try to get up after sitting or lying down for a while.

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Erythema Nodosum - Treatments Question: What was the treatment for your erythema nodosum?
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