Patient Comments: Erythema Nodosum - Symptoms

What symptoms did you experience with your erythema nodosum?

Comment from: shelley, 19-24 Female (Patient) Published: March 28

I had a painful bump on the outside of leg, and visited three doctors with different diagnoses. An operation took place to open the surface area. While I felt tugging by the surgeon, his assistant asked him quickly what he was doing. What the surgeon did, based on the lab results, was to remove my muscle on which erythema nodosum erupted. I was told erythema nodosum was due to a lack of a vitamin! I am in my 60s now (with an indentation on my leg) and cannot recall the exact vitamin deficiency.

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Comment from: Aretired RN, 75 or over Female (Patient) Published: February 11

The redness appeared first on the inside of my right ankle and the pain which was burning and also like a hundred little needles jabbing my skin, traveled up the inside of my leg. The lesion looked very much like erythema nodosum which I had developed about 10 years ago. I believe it was a response to my long term use of Nexium. I stopped that but the leg began to swell and became more and more unsightly in appearance and also very painful. Doctors have not agreed but topical steroids have helped and the swelling and pain are about gone.

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Comment from: Rebecca, 45-54 Female (Patient) Published: March 29

The red bumps that go along with erythema nodosum feel like a bad bruise. They change, starting out small and pink, sometimes growing large, then become intensely red and extremely sore. When it is at its worst, it feels like someone hit you with a baseball bat. It even hurts to walk. It's almost like your skin is so tight, the flexing motion of walking stretches the skin over the bumps and doesn't "fit" correctly. Eventually, the bumps get better, the color changes begin, and they sometimes even go away. One time, I tried a mineral supplement and it helped, but the next time I got them, it didn't work. Allergy medicine seems to help a little. Doctors don't have a clue and just seem interested in doing more tests and prescribing steroids to "see what will happen," which is nothing, except cause you to gain weight.

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Comment from: dee, 45-54 Female Published: May 28

I have experienced EN since approximately 1983-'84. As everyone says, it is extremely painful and takes time to go away. Over the years, I have tried to take notice as to what has happened and what's going on. It seems my EN breakouts occur when I'm exhausted, stressed, and very nervous. It frustrates me greatly that I can't control it. At this time, I have the worst breakout I've ever had. I enjoy outdoor activities and EN limits me greatly to the things I can do because of its appearance.

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Erythema Nodosum - Experience Question: Please describe your experience with erythema nodosum.
Erythema Nodosum - Treatments Question: What was the treatment for your erythema nodosum?

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