Patient Comments: Eosinophilic Esophagitis - Symptoms and Signs

What symptoms and signs did you experience with eosinophilic esophagitis?

Comment from: jmhh, 25-34 Male (Patient) Published: October 26

I have had a terrible swallowing problem that feels as if I cannot breathe and cannot get the food down. While it has been swallowed and I'm not choking, nothing will get by. I either will try to drink something carbonated to get it down or walk around. It can be quite scary because, at times, it will take up to 10 minutes to go away, and I will have to try and force myself to throw up. Some foods I have noticed have been chicken, fish, rice (mainly long grain), quinoa (almost every time I try to eat it), and various other things, including breads. I never had a biopsy done but plan on getting one soon because recently I have had a sore throat almost every morning. I was diagnosed with this eosinophilic esophagitis (EE) 10 years ago after receiving an upper GI endoscopy and swallowing test.

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Comment from: karen, 55-64 Female (Patient) Published: March 16

I was 57 when diagnosed with EE. I am a normal weight and very healthy with only seasonal allergies. The scratch test for food allergies and blood test for food allergies revealed nothing. The symptoms consistent with GERD, biopsy confirmed EE. I do have hiatal hernia, never any symptoms related to that (never heartburn! I have no symptoms and no longer fear eating for fear of a random swallowing episode.

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Comment from: Lynn Murdock, 45-54 Female (Patient) Published: December 27

I am 53 years old. I have had the issue with food getting stuck for 8-10 yrs. I thought that there was nothing that could be done except have a scope and get dilated. It is awful to go out to eat and have to sit there and not eat b/c it's stuck. Getting up and going to the bathroom and trying to throw up so that you can go back and finish your meal is such an embarrassing thing. I am so relieved to see others here who have the same problem. I went to the specialist today and found out I have EE. I have had many scopes in the past. Now I am scheduled to find out what I am allergic to but the reality is wheat, eggs, milk, soy, seafood are the usual suspects. I want to know so I can eliminate what is causing this. I am glad to know at least there is something I can do.

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Comment from: Mario, 25-34 Male (Patient) Published: August 15

I'm a 32 year old man with eosinophilic esophagitis. I don't experience swallowing problems but more so clinching feelings on the left side of my chest irregular heartbeats and fainting feelings at times. I am recently taking Flovent which helps at times and Omeprazole DR 20 MG for acid reflux. Today I experience real bad feelings in my chest while working at an asphalt plant, I thought I was going to pass out. I took off work but now I have been feeling bad all day. Everything always feels like it's in my heart and it scares me at times depending on the severity. Do any one else feel the same way at times? And what's a good remedy?

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Comment from: sem, 25-34 Female (Patient) Published: May 03

I have had problems swallowing since high school. I wish there were more known about this back then. It was high school when I first remember not being able to swallow French fries, if I was eating too hurriedly. I was diagnosed with eosinophilic esophagitis and Gastroesophageal reflux disease (GERD) around age 25. Now, 5 years later, both are still there. It still happens most with potatoes, though any solid food (I am a vegetarian) can be a problem. It happens most when I am stressed. I am a lawyer so that's a problem. The dysphagia can last like 10 minutes sometimes and is extremely painful. It's very embarrassing if I am around other people.

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Comment from: mayo1972, 35-44 Female (Patient) Published: May 03

I had my eosinophilic esophagitis diagnosed last year. For several months I had been feeling like my food was stuck in my throat and I would get a pain sensation in my chest. If I drank something it seemed to get better. Finally I had an incident so painful that I finally went to the doctor. Based upon the endoscopy and biopsies the diagnosis was made. I was on a steroid inhaler and am still currently taking omeprazole. I am starting to feel the sensation again and I'm scheduled for another endoscopy.

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Comment from: Shelly in Hawaii, 7-12 Female (Caregiver) Published: March 30

My 11 year old son has had EE since he was four. Without medication he would vomit or regurgitate into his mouth up to 20 times per day. He had skin prick allergy testing and the back patch but nothing came up as allergic for him besides dust and mold. He takes Loratadine 10 mg. every night, zantac 150 mg twice and day and does "slurries" with budesonide (pulmicort) liquid and pure maple syrup 30 min. before breakfast and dinner. He used to use .5 mg. but now uses 1 mg. ampules. The slurries are key to my son reducing his otherwise frequent chest pain and vomiting. He was missing 2-4 days per week of school due to his symptoms. We are currently eliminating wheat; dairy and soy to see if that will help him. I hope he doesn't have to take the meds for life as his doctors say. The side effects of steroids - anger, depression, aggression - are not fun. Luckily my son appears to be growing normally with height and weight which is a big relief for me.

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Eosinophilic Esophagitis - Experience Question: Please describe your experience with eosinophilic esophagitis.
Eosinophilic Esophagitis - Treatment Question: What was the treatment for your case of eosinophilic esophagitis?
Eosinophilic Esophagitis - Diet Question: Did you try an elimination diet to treat eosinophilic esophagitis? Please share your story.
Eosinophilic Esophagitis - Diagnosis Question: Please describe the events that led to a diagnosis of eosinophilic esophagitis.

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