Patient Comments: Eosinophilic Esophagitis - Experience

Please describe your experience with eosinophilic esophagitis.

Comment from: Worried mother, 7-12 Female (Caregiver) Published: November 15

My son has eosinophilic esophagitis and was recently diagnosed at the beginning of this year. I have been doing my research about it and cannot seem to find any answers as to why my son has prolonged diarrhea symptoms. As this disease seems to be a primarily upper esophageal issue I am concerned as to why he has the added symptoms. He also has vomiting and abdominal pain. He will get sick at times for weeks and nothing seems to help to ease his pain. We have been giving him prescribed acid reducing medications which have helped reduce his symptoms for several months, however now his symptoms are spiking up.

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Comment from: J., 35-44 Female (Patient) Published: June 01

After pills and pills that never worked for heartburn and chest pain, I was diagnosed with eosinophilic esophagitis after 12 years of problems. I finally got a food allergy test where they put food patches on your back for three days. With this method, they finally diagnosed a chicken allergy. Once I stopped eating all poultry products, all symptoms were gone after one month! Hang in there and persist to find the culprit. I have not taken any medicines, not even an acid reducer in over a year!

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Comment from: Cullensmum, 35-44 Female (Caregiver) Published: March 30

My 15 year old son has been diagnosed with eosinophilic esophagitis, and we've done the allergy testing and it came back negative (food and environmental). We've had 2 biopsy procedures and he's been taking Nexium 40 mg daily since late November late year. The last biopsy showed there were still changes going on in his throat. We're now heading back to see the specialist tomorrow to see what our next move is. I just wish I knew what was causing it!

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Comment from: EoEchick, 55-64 Female (Patient) Published: February 17

I have confirmed diagnosis of eosinophilic esophagitis, after endoscopy, dilation and colonoscopy, and nonfunctioning gallbladder removal. Currently I feel fabulous. My best advice is to get skin prick allergy test. I strictly removed all confirmed allergens from my diet (soy, dairy, tree nuts, and gluten). Inhaled confirmed allergens (grasses, pollens, dust mite, etc.), who knows, can't stop breathing, guess time will tell. I keep on hand swallowed steroids, used for approximately 3 weeks. Good result. But I feel allergenic food elimination is vital to feeling so much better. I still take Prilosec generic every day with super enzymes 1 per day. Can't tell you how much better I feel every day! Hope this helps anyone going through this right now, research on web may help.

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Comment from: Michelle, 25-34 Male (Caregiver) Published: February 02

My husband has this eosinophilic esophagitis. It's terrible. He is allergic to almost all fruits and vegetables. He can't eat healthy because of this problem. He's getting older and heavier as a result. The acid reflux medications don't really help. He needs an endoscopy every year or two to release stricture in his esophagus and break up scar tissue. I'm really worried that he will end up with cancer because of this. Now every time he gets sick, his sore throat and coughing are much more painful. It's frustrating that there is nothing they can do about it.

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Patient Comments

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Eosinophilic Esophagitis - Symptoms and Signs Question: What symptoms and signs did you experience with eosinophilic esophagitis?
Eosinophilic Esophagitis - Treatment Question: What was the treatment for your case of eosinophilic esophagitis?
Eosinophilic Esophagitis - Diet Question: Did you try an elimination diet to treat eosinophilic esophagitis? Please share your story.
Eosinophilic Esophagitis - Diagnosis Question: Please describe the events that led to a diagnosis of eosinophilic esophagitis.

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