Patient Comments: Endometriosis - Treatments

Were there any effective treatments for your endometriosis?

Comment from: Laura, 25-34 Female (Patient) Published: March 19

I have had problems since I was 15, I haven't had a period in 14 years. Now I am 30, and I was diagnosed with endometriosis and polycystic ovarian syndrome. I had surgery this past December and then had the Mirena inserted in February this year. I had been in severe pain for years and nothing has helped. I cannot work, clean my house, walk my dogs or just live a normal life. I am now going to see a different doctor to get a second opinion to see if I can just have a hysterectomy because I cannot deal with this any longer. I have seen several doctors and no one seems to be concerned that I have not had a period in 14 years or that I have I have had tons of reoccurring cysts always on my right ovary and now I am getting fibroid tumors in my uterus. I also had loop electrosurgical excision procedure (LEEP) done in July of last year and have been bleeding every day for 9 months now. No doctor seems to be worried about that and I am not talking spotting. I have been bleeding like my body is trying to make up for lost time of not bleeding or something. So hopefully when I go see this new doctor next week I will finally get something done because this is driving me crazy.

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Comment from: Anya070479, 35-44 Female (Patient) Published: September 05

I was diagnosed with endometriosis when I was around 22 after my ex-boyfriend found me curled up on the bathroom floor hysterically crying after emptying my bladder. I am now 35 and have had 10 scope surgeries to clean out the adhesions and scar tissue. Last surgery I had was robotic and it was the worst recovery. Sex is extremely painful therefore I've lost my sex drive. Emptying a full bladder or having a large bowel movement also causes it to flare up. My gynecologist keeps suggesting a total hysterectomy, but mentally I'm just not ready. Now I'm starting to wonder if I have interstitial cystitis because I can't believe that endometriosis is the only reason for my misery. It's very depressing. I used to be on pain pills for every period, but I've given up on taking those. Surgeries would provide relief for a few months... 18 months was the best time. It's just depressing and frustrating and scary.

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Comment from: sweety, 35-44 Female (Patient) Published: November 07

I was diagnosed with endometriosis in 2010 and had it removed. Everything seemed okay until 2012, I started having severe period pain during and after period. I was also having sharp pain on my lower right abdomen, lower back and cramp on my upper right leg. I was sent to gynecologist who told me it is endometriosis. It's now been three weeks since I had it taken out but I still experience severe abdominal pains, pain in pelvis and cramps in the right leg. Sometimes it's so bad I can't sit or lie down. My general physician keeps saying I should give it 4 weeks. The problems is pain killers are not helping.

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Comment from: Sweetee, 25-34 Female (Patient) Published: March 22

I am 33 years old. Three years ago, after suffering with painful periods for more than 16 years, I was diagnosed with endometriosis and fibroids. My doctor said if I wanted children, I should have them sooner rather than later--which was a worry since there wasn't anyone special in my life. This is such a painful disease and it's been so hard to diagnose. Although I have tried to live with this, I am fed up with having a hot water bottle constantly strapped to me and taking strong painkillers that don't seem to work. I've gotten to the point where I must consider surgical treatment for this condition since I can no longer take the pain. Yet I'm devastated if it prevented me from having children. I sympathize with other women who have this condition and advise anyone who is unsure to listen to her body. It's taken me so many visits to the doctor, but hopefully surgery will be the end of this painful road.

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Comment from: mommaof2, 25-34 Female (Patient) Published: March 19

I am 27 and was diagnosed with endometriosis at 21. I was told not to wait past age 25 to have children. I had lap with D&C and also took one dose of Lupron along with add back therapy for treatment. I tried several forms of birth control with no results. I was even more irregular and passed lg blood clots. I had my 1st child in 2009 and my 2nd in 2011. I had a boy and girl so I decided to have my tubes tied. Since I have experienced irregular periods and pain with intercourse. Saw my OBGYN PA and she suggested ablation. Still unsure of my decision, but wanted to share my story for all the young ladies out there concerned with fertility. There is hope, I became pregnant without assistance very easily despite my condition. Good Luck to all of you in your attempts to conceive.

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Comment from: ninalee51102, 25-34 Female (Patient) Published: March 01

I am 31 years old and have been dealing with endometriosis since my early 20's I have had a HSG test done and one of my tubes was blocked but still in massive pain so a year later I had a laparoscopy and was put on a shot to shut everything down so that my body could heal itself and three years later I was back to having massive pain yet again was put at the same shot again to shut everything down but it hasn't helped at all I am still in so much pain even when it's not that time of the month I will just have cramps from out of the blue that brings me to my knees and now I just don't know what to do.

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Patient Comments

Viewers share their comments

Endometriosis - Symptoms Question: The symptoms of endometriosis can vary greatly from patient to patient. What were your symptoms?
Endometriosis - Infertility Question: Is endometriosis the cause of your infertility? If so, what treatment options have you tried or been given?
Endometriosis - Diagnosis Question: Describe tests or exams that led to a diagnosis of endometriosis.
Endometriosis - Experience Question: Please share your experience with endometriosis.
Endometriosis: Diet Question: Please share your experience with the endometriosis diet?

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