Patient Comments: Endocarditis - Symptoms

What were the symptoms associated with endocarditis for you or someone you know?

Comment from: BarbaKay, 55-64 Female (Patient) Published: May 02

My symptoms of endocarditis were loss of appetite and weight loss; extreme fatigue; fevers every evening of 101 - 102; super soaker night sweats; majorly swollen ankles; 3-4 night trips to the restroom (water retention); shortness of breath - when I would "laugh" it came out as coughing. I went to the doctor. She took blood and found my blood count to be in the 7-8 range, where 15 is normal. Found my iron in the "normal" range. Found my sedimentation rate in the 90s, where 30 is normal. She said I had anemia of chronic disease and now we have to figure out which chronic disease it is! The infectious disease doctor figured it out. Endocarditis! Boom - to the hospital I went for 24/7 antibiotics. I had open heart surgery to repair the mitral valve. Moral of the story – if you've ever had to take premedication antibiotics prior to a dentist appointment, and now don't because the Heart Association removed the mandate – take them anyway and save yourself from open heart surgery - or death!

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Comment from: Beverley, 55-64 Female (Caregiver) Published: March 14

My husband died of endocarditis last November. It came on quickly and he had no symptoms of this until the week before he died. It"s hard to diagnose and is very much like any other disease. If you start getting tired and coughing see a doctor.

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Comment from: zipper chest, 45-54 Male (Patient) Published: January 08

My endocarditis started with classic fever symptoms: chills, followed by fever, headaches and body aches. The first onset of symptoms lasted for 2 days and almost subsided by the 3rd day. But for the following several days, particularly beginning in the late afternoons and continuing through the nights, I experienced continued fevers (102 degrees+), severe headaches and night sweats. The 7th day after the onset of the original symptoms I saw my doctor, who thought it might be a viral infection. The 10th day after the onset of the original symptoms I was no better and my doctor checked me into the emergency room.

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Comment from: zippy, 55-64 Male (Patient) Published: December 16

My first symptom was a loss of appetite, I was losing 4 pounds per week. I had night sweats, tired all of the time. My physician was convinced it was an upper gastro intestinal issue and I went through testing for that. I then had a sharp pain in my right arm on the inner arm at the elbow bend. I later found out it was an infection from the vegetation that had broken off from my aortic valve. It took about 6 weeks until my physician ordered a blood culture that showed the blood infection and led to a 7 week hospital stay, a valve and root replacement/repair. I also had to have the ulnar blood vessel replaced by a vein from my leg due to the infection in the arm. My heart stopped in ICU after the first operation but I was revived by CPR (Cardiopulmonary resuscitation). Even though my physician missed the diagnosis and put my life in jeopardy I feel fortunate the surgeons were on top of it and saved my life. I will look for second opinions in the future.

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Comment from: Xxxx, 45-54 Male (Patient) Published: January 27

The endocarditis symptoms began as flu-like symptoms with chills, low grade fever, slight dizziness, fatigue, and minor headache. I had major night sweats and weight loss after that. I also had a cough which may or may not have been related.

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Comment from: Waudene, 75 or over Female (Patient) Published: March 20

I have a mitral valve prolapse and osteoarthritis with bone thinning. My family doctor suggested I take Prolia. I asked if it had any bad side effects, and he had said "no". After two injections I read in a magazine, all the side effects. Some of these I have experienced. My concern is endocarditis, so no more Prolia for me. My cardiologist will probably not be happy that I was given the Prolia. I am on medications for the valve prolapse. Hopefully it will be out of by body soon.

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Endocarditis - Treatment Question: What kinds of treatment, including medication, did you receive for endocarditis?

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