Patient Comments: Endocarditis - Symptoms

What were the symptoms associated with endocarditis for you or someone you know?

Comment from: Beverley, 55-64 Female (Caregiver) Published: March 14

My husband died of endocarditis last November. It came on quickly and he had no symptoms of this until the week before he died. It"s hard to diagnose and is very much like any other disease. If you start getting tired and coughing see a doctor.

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Comment from: zipper chest, 45-54 Male (Patient) Published: January 08

My endocarditis started with classic fever symptoms: chills, followed by fever, headaches and body aches. The first onset of symptoms lasted for 2 days and almost subsided by the 3rd day. But for the following several days, particularly beginning in the late afternoons and continuing through the nights, I experienced continued fevers (102 degrees+), severe headaches and night sweats. The 7th day after the onset of the original symptoms I saw my doctor, who thought it might be a viral infection. The 10th day after the onset of the original symptoms I was no better and my doctor checked me into the emergency room.

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Comment from: zippy, 55-64 Male (Patient) Published: December 16

My first symptom was a loss of appetite, I was losing 4 pounds per week. I had night sweats, tired all of the time. My physician was convinced it was an upper gastro intestinal issue and I went through testing for that. I then had a sharp pain in my right arm on the inner arm at the elbow bend. I later found out it was an infection from the vegetation that had broken off from my aortic valve. It took about 6 weeks until my physician ordered a blood culture that showed the blood infection and led to a 7 week hospital stay, a valve and root replacement/repair. I also had to have the ulnar blood vessel replaced by a vein from my leg due to the infection in the arm. My heart stopped in ICU after the first operation but I was revived by CPR (Cardiopulmonary resuscitation). Even though my physician missed the diagnosis and put my life in jeopardy I feel fortunate the surgeons were on top of it and saved my life. I will look for second opinions in the future.

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Comment from: Xxxx, 45-54 Male (Patient) Published: January 27

The endocarditis symptoms began as flu-like symptoms with chills, low grade fever, slight dizziness, fatigue, and minor headache. I had major night sweats and weight loss after that. I also had a cough which may or may not have been related.

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Comment from: tami, 19-24 Female (Patient) Published: December 17

My symptom was, I was totally exhausted. I had a new born and a 1 1/2 year old and I could not stay awake and I had horrible night sweats. I would sleep with the window wide open in winter and wake up soaking wet.

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Comment from: Waudene, 75 or over Female (Patient) Published: March 20

I have a mitral valve prolapse and osteoarthritis with bone thinning. My family doctor suggested I take Prolia. I asked if it had any bad side effects, and he had said "no". After two injections I read in a magazine, all the side effects. Some of these I have experienced. My concern is endocarditis, so no more Prolia for me. My cardiologist will probably not be happy that I was given the Prolia. I am on medications for the valve prolapse. Hopefully it will be out of by body soon.

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Comment from: patricia, 55-64 Female (Caregiver) Published: December 16

My mum had a very high fever, cough and felt very weak and tired.

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Endocarditis - Treatment Question: What kinds of treatment, including medication, did you receive for endocarditis?

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