I have hepatic enchephalopathy. It's the scariest thing I've ever dealt with and equally as frustrating. I have always been a very strong person, and now I don't trust my decisions. I second guess my decisions, am scared to death of protein, and for a retired cop who's used to having it all under control, it makes me crazy. I find myself just withdrawing from everyone rather than do something stupid. I'm also tired a lot. My sleep schedule is bizarre after years of complete regularity. It's just frustrating and scary. I used to be able to recognize when it was elevated, but now I can't. Published: July 20 ::

I have Hashimoto's encephalopathy. It is treated with steroids, specifically prednisone or, in my case, Medrol. ( Few encephalopathies are treatable.) It is one of the lesser-known encephalopathies. It is related to Hashimoto's thyroiditis in that the thyroid antibodies attack the neurons of the brain. I thought I was developing dementia. The main symptom at first is short-term memory loss. There can be stroke-like symptoms, tremors, confusion, walking problems, and seizures to name a few. I could have ended up in a nursing home...and maybe some people without more knowledgeable doctors have. Thankfully, I was diagnosed early and treated by a good doctor. I was able to return to work. Published: October 06 ::

My sister is 65 years old and is hospitalized in an ICU unit in Houston with the diagnosis of encephalopathy. She went from normal activity to confusion to coma in a relatively short time. She is completely unresponsive. The doctors have run all the tests and so far are unable to find the reason for the encephalopathy. Her prognosis is very poor because it is thought that she has had an MI and CVA; she is positive for pneumonia. This is a very confusing disease process. Published: October 06 ::

I was recently diagnosed with Encephalopathy. My Neurologist believes it is from medications. He said he doesn't prescribe Nortriptyline to patients over 50. He didn't seem sure that that was the medication that caused it. I switched medications and am concerned that I should go off all medications. Has anyone else out there gotten Encephalopathy from medications? I'd be interested in talking to you-anonymously, of course. Thank you. Published: November 09 ::