Patient Comments: Encephalopathy - Type of Encephalopathy

Question:From what type of encephalopathy did you suffer?

Comment from: concerned mommy, 3-6 Male (Caregiver) Published: March 06

My son is 5 years old, he has just been told he has encephalopathy, but it says unspecified. We wonder what type it is. He has mood swings, very irritable at times, high anxiety, nervous, tremors, sensory integration disorder, separation anxiety disorder, speech problems, and learning disabilities.

Comment from: Jodi, 45-54 Female (Patient) Published: July 06

After reading al your information although I am grateful am not alone am so very sad that you share my misfortune. Mine began at 44 after chemical exposure neurotoxins at work and continued as nobody took the stand they promised. I have suffered so much memory loss, cognitive defects, hearing loss, brain atrophy, migraines, sleep issues, and weight loss.

Comment from: 55-64 Female (Patient) Published: October 06

I have Hashimoto's encephalopathy. It is treated with steroids, specifically prednisone or, in my case, Medrol. ( Few encephalopathies are treatable.) It is one of the lesser-known encephalopathies. It is related to Hashimoto's thyroiditis in that the thyroid antibodies attack the neurons of the brain. I thought I was developing dementia. The main symptom at first is short-term memory loss. There can be stroke-like symptoms, tremors, confusion, walking problems, and seizures to name a few. I could have ended up in a nursing home...and maybe some people without more knowledgeable doctors have. Thankfully, I was diagnosed early and treated by a good doctor. I was able to return to work.

Comment from: sharon2065, 55-64 Female (Caregiver) Published: October 06

My sister is 65 years old and is hospitalized in an ICU unit in Houston with the diagnosis of encephalopathy. She went from normal activity to confusion to coma in a relatively short time. She is completely unresponsive. The doctors have run all the tests and so far are unable to find the reason for the encephalopathy. Her prognosis is very poor because it is thought that she has had an MI and CVA; she is positive for pneumonia. This is a very confusing disease process.

Comment from: adamsj74, 35-44 Male (Patient) Published: February 13

I am 37 who suffers with hepatic encephalopathy every day and I to get frustrated with myself sometimes so much to say I wish I could check out but we got to raise awareness and get support groups through Facebook and twitter build from each other strength just a few suggestions I had.

Comment from:, 65-74 Male (Caregiver) Published: March 29

My father has been diagnosed with hepatic encephalopathy, peripheral neuropathy, and osteoarthritis on his knees. He's only 67 and it is believed to be his alcoholism that caused this condition. The doctor has started him on hospice but I have hope he can get better. He is cognizant and speaks, although repeats his phrases quite a bit. Is there any therapy out there that can help? He eats well but it is getting more difficult to move around and he's lost bowel control. Need better advice than hospice. Can anyone help?

Comment from: Pixxsie, 25-34 Female (Patient) Published: December 06

I am suffering from hepatic encephalopathy. Chronic alcoholism. Liver very swollen, veins protruding to surface in abdominal area. I'm very scared. I go to Alcoholics Anonymous. I have tried so hard to stop drinking. Today I'm very scared. I'm confused, - I've done an IQ test - about 2 years ago, and had nothing to worry about. Now...I'm scared, confused, my livers failing and I'm at work right now with a very swollen face, abdomen (and I'm a tiny girl) - the tears are welling up, I feel that I'm dying. I've been hospitalized a few times for pancreatitis and hepatitis. I try to stay positive, but the toxins in my blood due to impaired liver function and cirrhosis are leading me to mental confusion. I'm embarrassed at work and I am losing all dignity. Once a pretty girl with a good heart and now I'm ill, afraid, humiliated and feel like a waste of space. God please grant me the capacity to not give up because right now I want to give up.

Patient Comments

Viewers share their comments

Encephalopathy - Symptoms Question: What were the symptoms of encephalopathy in you or someone you know?
Encephalopathy - Diagnosis Question: What types of tests and exams led to the diagnosis of encephalopathy in you, a friend, or relative?
Encephalopathy - Prognosis Question: What is the outlook for a patient you know who had encephalopathy?

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