Dystonia (cont.)

Where can I get more information about dystonias?

For more information on neurological disorders or research programs funded by the National Institute of Neurological Disorders and Stroke, contact the Institute's Brain Resources and Information Network (BRAIN) at:

BRAIN
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
http://www.ninds.nih.gov

Information also is available from the following organizations:

Dystonia Medical Research Foundation
1 East Wacker Drive
Suite 2810
Chicago, IL 60601-1905
dystonia@dystonia-foundation.org
http://www.dystonia-foundation.org
Tel: 312-755-0198
Fax: 312-803-0138

National Spasmodic Torticollis Association
9920 Talbert Avenue
Fountain Valley, CA 92708
NSTAmail@aol.com
http://www.torticollis.org
Tel: 714-378-9837 800-487-8385

American Speech-Language-Hearing Association (ASHA)
2200 Research Boulevard
Rockville, MD 20850
actioncenter@asha.org
http://www.asha.org
Tel: 800-638-8255
Fax: 301-571-0457

Benign Essential Blepharospasm Research Foundation
637 North 7th Street Suite 102
P.O. Box 12468
Beaumont, TX 77726-2468
bebrf@blepharospasm.org
http://www.blepharospasm.org
Tel: 409-832-0788
Fax: 409-832-0890

Bachmann-Strauss Dystonia & Parkinson Foundation
Fred French Building 551 Fifth Avenue, at 45th Street
Suite 520
New York, NY 10176
info@bsdpf.org
http://www.dystonia-parkinsons.org
Tel: 212-682-9900
Fax: 212-987-0662

Spasmodic Torticollis Dystonia/ST Dystonia
P.O. Box 28
Mukwonago, WI 53149
info@spasmodictorticollis.org
http://www.spasmodictorticollis.org
Tel: 262-560-9534 888-445-4588
Fax: 262-560-9535

American Dystonia Society
17 Suffolk Lane
Princeton Junction, NJ 08550
info@dystoniasociety.org
http://www.dystonia.us/
Tel: 310-237-5478

SOURCE:

"Dystonia Fact Sheet." National Institute of Neurological Disorders and Stroke. 18 Dec. 2013.


Medically Reviewed by a Doctor on 12/18/2013

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