Patient Comments: Dyslexia - Diagnosis

How was your dyslexia diagnosed?

Comment from: matt, 13-18 Male (Patient) Published: July 26

I was diagnosed with dyslexia when I was 6 years old. My teacher said my parents should get me tested because I was really smart, but I couldn't learn to read. My parents took me to an educational psychologist who confirmed that I had dyslexia.

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Comment from: 7-12 Male (Caregiver) Published: February 13

My grandson had Dyslexia test in 2nd grade was told that he did not have it. And now he is in the sixth grade and the new test shows that he has dyslexia. I feel like crying and feeling bad for him. We need to get help for him.

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Comment from: cc success, 45-54 Female (Patient) Published: November 30

HI, I agree with the person that said that they were glad that they weren't told they had this disability. I had this disability for a long time and didn't know. I just really founding out recently. My parents pushed me and pushed me. Of course I thought how unfair etc. I made me more determined. I have a college degree and my friend reminded me of how important it is to have one. Don't give up and push yourself and whoever you know that has this. I have read up on this subject and knowledge is the best hope for success. Don't give up on yourself or hope. All things are possible to them that believe!!!

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Comment from: jenifer, 7-12 Female (Caregiver) Published: March 01

My name is Jenifer and I'm sure my son has Dyslexia. He is in the fifth grade. He cannot read very well at all, or write very well. He changes numbers and letters around all the time. I can't seem to get any answers anywhere. I have asked the school since he started school and they say we cannot give you a medical diagnosis. He is way behind I feel and he goes to middle school next year. He has an IEP but I feel that the school has really failed him.

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Comment from: c90213, 7-12 (Caregiver) Published: February 18

My son has dyslexia. He is in grade 3 but he is not far enough behind that they will get him tested and I cannot afford it. His dyslexia is very mild and I always knew there was something there even though the teachers kept saying he'll grow out of it. He cannot tell the difference between b and d, p and q, and numbers like 3 or 5 or S or Z he often writes them the wrong way. He cannot tell the difference between left and right and does not know his months of the year and still has trouble with knowing what day of the week it is and what the following day is, telling time for him is very hard in terms of the passing days. He had a lot of trouble reading from day one and his school gets extra one on one help for those problem readings. It did help a lot. He is doing pretty good now and works hard to keep up but my problem is because he is not two grades behind I cannot get the help or testing via the school. His behavior and depression are much better now too but I don't want him to fall too far behind again and not sure what to expect as he gets older and school gets harder. What can I do?

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Comment from: Debbie, 45-54 Female (Caregiver) Published: March 14

For all of you who want the schools to test your child, just put it in writing that you want your child tested for learning disabilities, sign it and date it. This will start your child's timeline. The schools have a limited time period to test and hold meetings. I believe this is law. You need to keep a copy of everything. You have the right to request a copy of the results and receive them 10 days before the IEP meeting. It is best to request this when you submit your letter for testing. Put everything in writing and keep copies. When you go to the meeting make sure you have your notes on your observations and concerns. Bring samples of your child's work and test to the meeting as well. Bring any notes from the teacher about your child that would back up your concerns. This is important for you to share. It is also a good idea that you find an advocate to help your child get the help he or she needs. I have it, my children have it, and my grandchildren have it. I have been working on my credential for special education. The schools that I have dealt with do not test for dyslexia, nor does my grandchildren's doctor.

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Comment from: cnorman, 7-12 Female (Caregiver) Published: February 13

I have a nine year girl that we just found out she is dyslexia I have been telling the school she had problems but they didn't want to listen to me and now that she is in second grade they decided to test her and sure enough she has it. Now I have to get her some help with it

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Patient Comments

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Dyslexia - Describe Your Symptoms Question: Please describe the symptoms you experienced with dyslexia.
Dyslexia - Causes Question: What was the cause of your dyslexia?
Dyslexia - Personal Experience Question: Do you or your child have dyslexia? Please describe what it's like and how you cope.
Dyslexia - Treatment Question: What educational methods or approaches have you or your child used to deal with dyslexia?

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