Patient Comments: Drug-Induced Liver Disease - Describe Your Experience

The symptoms of drug-induced liver disease can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Comment from: TCB, 35-44 Male (Patient) Published: September 02

I was prescribed Diclofenac Sod 75mg and had side affect dark urine and I took about 10 pills. I went for something else now stressed about an elevated bilirubin and I also stop taking Simvastatin. I will change diet and exercise to lower cholesterol. I am still under going tests, but this is not worth the side affects.

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Related Medications: Diclofenac | Simvastatin

Comment from: GIMS, 55-64 Female (Patient) Published: July 15

I started noticing sore nodules in the upper portion of the liver. My urine became dark, and I had decreased urine output. I had been having fatigue for a long time that was diagnosed as anxiety and depression. I am very sensitive to drugs and usually have at least 50% of the side effects of any drug. I am so sad because nobody wanted to listen to my sensitivity to drugs. I refused to take some drugs because I would rather die than live with the side effects. I have ended up with acute liver disease because of some of the drugs I am on. The doctor instantly took me off HCTZ, and I am still worried about Norvasc and Benicar.

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Comment from: Leo, 45-54 Male (Patient) Published: June 29

I am 52 with Hepatitis C and my next check up for that is a couple months away. Last month I had a hip resurface and have been on oxycodone. Now, I am not taking oxycodone because of the way it makes me feel and my pain is going away, except I need something to get me thru a nights sleep. My pain level is a lot better. My question is, what pain med over the counter or prescription is best for someone with Hepatitis C.

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Related Medications: oxycodone

Comment from: Have FAITH, 35-44 Female (Patient) Published: June 29

I had a few glasses of wine one night, a few days later I became ill, feeling as though I had a flu but with stomach pains. I went to the doctor and she prescribed erythromycin (broad spectrum antibiotic) that night I collapsed on the floor in sever pain. I was taken to the ER where I was diagnosed with stomach pain and given (donnatal). When I returned home my sister (25miles away) called. The ER doctor had contacted my emergency contact as I was on the way home (in even more pain) he had over looked my labs, my alt and slt were elevated (in the thousands) and my pancreas was inflamed, he needed me to come back to the ER immediately. I did and went thru a series of tests and diagnosis on to finally discover that I had autoimmune hepatitis type I (a liver disease where your body attacks your liver) my symptoms were severe pain in my upper right rib cage, extreme fatigue, pale stool, itching, as best I can remember. I was also diagnosed with Hepatitis C and Sjroens syndrome therefore I couldn't be treated for the Hepatitis C. It would make the autoimmune hepatitis worse, so I was put on prednisone and something else but anyway I stopped taking all of it, started eating better and hydrating myself, got pregnant and my levels dropped back to normal. I now have two girls 5 and 2 and so far I feel really good. Let me make it clear that autoimmune hepatitis has a 10 year life expectancy and let me also make it clear that I would not be here today without the power of prayer and that's why I stopped the medications. It was a walk of faith.

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Related Medications: erythromycin | prednisone

Published: June 29

I am a 19 year old female. One day I just started feeling really queasy all the time and not really having much of an appetite, this went on for days and I started getting worried I was pregnant, then I started noticing my urine was a really dark brown, I started getting to the point where I couldn't keep anything down I then immediately drove myself to the ER. When the ER doctor saw me she then noticed the whites of my eyes were yellow and right there she said hepatitis. After hours of tests and being admitted I was then released the next night, still feeling the same as when I came in they said it was viral it will take awhile to go away. The next day I still felt horrible and couldn't hold anything down. I called my doctor and he said to go to Dallas so I rushed to Dallas where they had a good liver team and after more and more tests and after being there 3 days I had to get a liver biopsy where I was then diagnosed with autoimmune hepatitis. When I was in high school I was on multiple tetracycline's for my acne and my doctors realized this is what triggered my liver to do this and now I will be on prednisone and azathioprine for 22 months. So watch out to anybody taking tetracyclines because this could happen.

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Related Medications: tetracycline | azathioprine


Patient Comments

Viewers share their comments

Drug-Induced Liver Disease - Causes Question: What caused your drug-induced liver disease?
Drug-Induced Liver Disease - Hepatitis Question: Did you have drug-induced hepatitis? Please describe your experience.
Drug-Induced Liver Disease - Cirrhosis Question: Were you or someone you know diagnosed with drug-induced cirrhosis? Please share your story.
Drug-Induced Liver Disease - Treatment Question: In addition to stopping the drug that caused liver disease, what types of treatment did you receive?

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