In this Article

• Introduction to Down syndrome
• The Chromosomal Basis of Down syndrome
• Signs and Symptoms of Down Syndrome
• The Occurrence of Down syndrome
• Prenatal Screening and Diagnostic Testing
• A Diagnosis of Down Syndrome
• Down Syndrome and Associated Medical Disorders
• Newborns
• Infants and Preschool Children
• Early Intervention and Education
• Adolescence and Down syndrome
• Adults with Down syndrome
• Down Syndrome in the Workplace
• Future Research in Down Syndrome
• Questions and Answers About Down Syndrome
• Additional Resources for Information on Down Syndrome
• Down Syndrome Glossary
• Down Syndrome Index

Additional Resources for Down Syndrome

Information and Assistance

Administration on Developmental Disabilities
Administration for Children and Families
U.S. Department of Health and Human Services
Mail Stop: HHH 300F
370 L'Enfant Promenade S.W.
Washington, DC 20447
(202) 690-6590
http://www.acf.dhhs.gov/programs/add/

American Speech, Language and Hearing Association
10801 Rockville Pike
Rockville, MD 20852
1-800-638-8255 or 1-888-321-ASHA
http://www.asha.org/

Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234-1349
(412) 341-1515 or 1-888-300-6710
http://www.ldanatl.org/

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
(914) 428-7100
1-888-MODIMES (1-888-663-4637)
http://www.modimes.org/

National Down Syndrome Congress
1370 Center Drive, Suite 102
Atlanta, GA 30338
1-800-232-6372
(770) 604-9500
http://www.ndsccenter.org/

National Down Syndrome Society
666 Broadway
New York, NY 10012
1-800-221-4602
(212) 460-9330
http://www.ndss.org/

National Information Center for Children and Youth with Disabilities
P.O. Box 1492
Washington, DC 20013-1492
1-800-695-0285
(202) 884-8200
http://www.nichcy.org/

Mid-Atlantic Regional Human Genetics Network (MARHGN)
(genetic counseling)
Curtis Coughlin II, MS, MARHGN Coordinator
MARGHN c/o Christiana Health Care Services
Genetics Room 1988
4755 Ogletown-Stanton Road
P.O. Box 6001
Newark, DE 19718
(302) 733-6732
http://www.pitt.edu/~marhgn/

National Society of Genetic Counselors
233 Canterbury Drive
Wallingford, PA 19086-6617
(610) 872-7608
http://www.nsgc.org/
The Arc of the United States
1010 Wayne Avenue, Suite 650
Silver Spring, MD 20910
(301) 565-3842
(301) 565-3843 - Fax
http://www.thearc.org

SOURCE: national Institutes of Health, national Institute of Child Health and Human Development

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